|
Re: My post op-as well as my reasons for not trying Lupron
From: Alyson (anonymous@obgyn.net)
Thu Oct 13 08:00:40 2005
Hey,
Just wanted to say I hear ya! Just had my post op this morning. My doc
was very receptive to not going on Lupron, he doesn't like it much
himself. He put me on Aygestin, told me to take it continuously for no
more periods until I am ready to have kids (if I decide to do that). He
says it accomplishes the same thing as Lupron without the side effects
and is more effective than birth control pills. I've only been on it a
week, but so far so good. Thought I'd pass that along in case you want
to look at it as an option.
Alyson
At Thu, 13 Oct 2005, Trisha wrote:
>
>Hello girls! Well yesterday I had my post op-didn't go too bad but I
>think my Dr. was disappointed that I said no to Lupron, I'm going to
>try continuous bc for now. I have done bc in the past and did
>relatively well with barely any side effects so I'm hoping all goes well
>this time. I asked my Dr. how much endo was not removed and all he
>told me was that they got all they could so who knows? I really, really
>am going to try to go to see a specialist if and when I need surgery
>again. I have to say, you guys are having a huge debate on this Lupron
>med, and I have to say thank you to all who are posting, good or bad on
>the subject. I struggled some with my decision and even after making
>the decision am glad to read any info on the subject. My opinion may
>not be welcome but hey, here it is. I, very fortunatly, have had endo
>pain that is debilitating to the point where I can do nothing but lie in
>bed 2-3 days of the month. I have other pain that I believed is caused
>but endo but it does not take away my life on most days. Now as we all
>now, your endo can be very extensive and cause little pain, or vise
>versa. I have been told that my endo is extensive and severe but also
>that it is stage 2 so who knows? I have my reasons for not wanting to
>take the Lupron as where others who have their reasons for taking it. I
>think we should all agree that whether it is Lupron, a lap or any other
>drug, the patient should research and get as much info as possible-this
>is our lives and our bodies! But for me, well there are of course all of
>the horror stories about Lupron, the fact that they have been sued and
>so on. But mainly when you have endo you don't have a lot of
>options-and none of them are really good ones-get pregnant (are u ready
>for that?), hysterectomy (major surgery and isn't a cure-not to mention
>if you aren't done or haven't had kids), Lupron or other harsh hormonal
>drugs (which for some work-yeah! but for others can give you more pain
>and suffering than it's worth), bc pills, which work for some and
>doesn't do a great job for a lot of ppl in keeping endo and it's pain at
>bay), nothing (endo will come back) and a lap (getting cleaned out is
>good but it will come back). So, all of these options have certain
>risks and side effects and I agree with the other lady that said you
>need to weigh the pro vs cons. But for me, all of these options have
>something in commom, eventually the endo will come back, with Lupron and
>a lap or other hormornal drugs you could be pain free for what? Maybe a
>year? Maybe two? Maybe less? And we all know that if you are one of the
>ppl Lupron helps, well, you can't take that until you hit menopause
>naturally as the FDA doesn't say thats ok. So, if the endo will always
>come back after all of these treatments, for me, it makes sense to try
>to treatments first that have less side effects, like some of you have,
>(although not saying any of you haven't). So things like diet, the
>pill, natural progesterone, well, make more sense to me. Now these
>won't work for everyone and I don't know if it will work for me, but I'm
>going to try and see. The thing that really spoke volumns for me
>though, if there is one thing that ppl who really, really know endo
>agree on, is that in this country we do have a few few specialists, Dr.
>Redwine, Dr. Cook and a few others, they are very well respected with
>patients and places like the endo assoc. that they are specialists, and
>I have not heard of anyone saying that these Dr.s who specialize in
>endo, rave about and prescribe Lupron. I could be wrong and that and if
>I am I'm sure I will be corrected but that is huge to me. So, all in
>all, thanks to everyone who is heavily debating the Lupron issue, than
>at the very least, whether you decide to try it or not, you make the
>decision with some knowledge and not completly blind. Have a good day
>girls and no matter what treatment you are using, I wish you all an end
>to this horrible disease.
|
|
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)