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Re: Anyone else using Mirena IUD for endo pain, and your experiences with ovarian cysts?From: anonymous@obgyn.netTue Oct 11 13:10:50 2005
At Sat, 8 Oct 2005, Tara wrote: > >Hi, I just had the Mirena placed yesterday for my adenomyosis. It was >much more painful than I expected as I kept popping Ibuprofen until I >was at 800mg although I should have gone up to 1000mg because even at >that I felt like I was in hard labor. Already had 3 kids. Took two >doses of Ponstell next and woke up at 2:00 am with pain again and took >800mg of Ibuprofen again. Woke up with lots of bleeding (read flooding) >and yucky clots. Took 400mg ibu this morning as pain was lessening, but >I seem to feel the device in my uterus. Very gross. > >As a note I had already been bleeding for almost 2 weeks straight when >the device went in so already a pretty nasty period. I asked my doc if >I could take Seasonale along with the Mirena to see if that would reduce >the bleeding from Mirena. She was cool with it and said I could finish >my leftover pack of 1 month Seasonale. Took Seasonale over the summer, >but stopped for a plane flight because I was terrified of having a blood >clot mid-air. I was a bit paranoid I guess. I'm 38 and have a familial >history of strokes so the estrogen component made me too nervous to >continue using it. I was excited about the Mirena though since it had >the same ingredient (levonogesteral) as Seasonale which seemed to be >about the only BCP I could tolerate emotionally. >My question to you ladies is anyone else taking a BCP along with their >Mirena? If so what has been your experience? I'm terrified of putting on >10,000 pounds and becoming a raging bitch, but I'd like to avoid the 3-6 >months of bleeding that normally comes with Mirena. I will risk the >temporary clot risk to avoid anymore bleeding. > >-- >Tara > >At Sun, 31 Jul 2005, Jennifer wrote: >> >>At Sun, 18 Jul 2004, Monica wrote: >>> >>>At Sat, 6 Mar 2004, Carrie wrote: >>>> >>>>I am new to these boards and would like to post on my experience with >>>>endo. I was diagnosed 2 years ago after a laporoscopy and cautery. I >>>>had a "hunch" that it would be endometriosis as my mother has it, as >>>>does my auntie. I have suffered painful, heavy and irregular periods >>>>since I first began menstruating as a teen and also have cycles of >>>>diarrhea and constipation, though never been scoped or diagnosed with >>>>IBS. My experiences over the years with BC pills have been negative. >>>>Even on lower dose brands like Alesse, I would find myself becoming fat, >>>>weepy, neurotic and depressed, however I did find symptomatic relief >>>>from pain with the pill. After waiting for almost a year, I managed to >>>>get into an Endometriosis & Pelvic Pain Clinic, which I am very grateful >>>>for. I have found a very supportive physician who actually listens to >>>>me. While friends of mine who also suffer endo have had issues with the >>>>medical community not taking their pain seriously, I guess I have been >>>>lucky in my encounters with them. Maybe it's because I'm also an RN, I >>>>am able to have frank discussions with my care providers regarding my >>>>care. Anyway, because I am only at Stage 1-2 of endo, and cannot >>>>emotionally tolerate the pill, my specialist has laid out my medical >>>>options as being more surgery to look for adhesions/cysts, more NSAIDS >>>>(do they ever do a number on my tummy though), or the Mirena IUD. While >>>>IUDs are usually contraindicated for endometriosis because they tend to >>>>cause heavy bleeding and cramping, the Mirena will eventually and >>>>hopefully stop me from bleeding heavily, if at all. Since I have had it >>>>inserted though, I have had nothing but pain. Cramping pain, stabbing >>>>pain, pain that makes me empathize with men who get kicked in the >>>>testes. Emotionally, I am not noticing the birth control side effects >>>>since Mirena acts locally on the uterus and is not circulating in the >>>>blood stream in a very high quantity. However, being house bound in the >>>>fetal position, and missing many shifts of work due to the pain, is >>>>taking it's toll. Insertion was uncomfortable, because I have no >>>>children, my doc ended up having to anesthetize my cervix to get the IUD >>>>in, and I did feel mildly shaken up afterward. >>>>To get to my point though, I'm wondering if anyone else has had an >>>>experience like mine. The pain after insertion grew to be intolerable >>>>enough to send me to the clinic for tylenol 3, I began to think I had a >>>>possible cervical infection, but with the absence of fever, it wasnt >>>>likely. Turned out, I has been partially expelling my IUD. Ultrasound >>>>showed I had passed the body of the device about 2 cm down into my >>>>cervix, just short of it dangling into my vagina. My doctor, on my >>>>isistance put me on antibiotics prophelactically and pushed the IUD back >>>>into uterus. Infection risk was low, so I was game to try again. Turns >>>>out I now have a cyst growing on my right ovary (where a great deal of >>>>pain and pressure has been) and while it was only ovary sized in >>>>January, it appeared almost as large as my uterus in February on the >>>>ultrasound. We are assuming this is just a progesterone-cyst, a normal >>>>(but abnormally large and rapidly growing) thing and that it will be >>>>re-absorbed by my body. While the cervical pain is gone and the IUD >>>>seems to be doing its thing (though I have now been bleeding/heavily >>>>spotting for almost 2 1/2 months now), I am getting increasing >>>>discomfort in my right side, causing me to miss more work. I know this >>>>is a long post, but I am hoping that maybe one of the doctors in the >>>>forum may be able to give me any indication that this has happened to >>>>other women. How can you tell if one of these cysts is going away or if >>>>it has burst? Can they change from fluid filled to a chocolate cyst if >>>>there is internal bleeding? I get no relief from this discomfort with >>>>naproxyn, diclofenac or tylenol. While I am a medical proferssional >>>>myself, gynecology is not really my scope of practice. I have the >>>>basics, but really want to arm myself with knowledge about my disease. >>>>Anyone out there who can relate to this, please do! This disease, like >>>>any, is different for each individual, and I know I am using a >>>>relatively unconventional treatment method, so I'd just like some >>>>feedback. >>>>~cheers~ >>> >>>I also had a large cyst (18 cms long) develop IN my ovary within 3 wks. >>>I had the Mirena insterted for 5 mos when this happenned, and had it >>>inserted 2 months after delivering my last child by C section >> >>Hi, >>I too was diagnosed with endometriosis and, after surgery to remove it, >>ended up having a mirena as it appears that I also have adenomyosis.. >>The Mirena seemed like a good choice at the time-- anything that might >>reduce bleeding and symptoms was worth a try! I've had the mirena for 8 >>months now and in that time I've had two cysts in my right ovary. The >>first cyst I was unaware of until it burst (called a 'cyst accident' >>apparently)-- this was incredibly painful-- you'd know if this happens! >>The second time I had symptoms similar to having a UTI or appendicitis. >>Upon US they found a 4.2cm cyst and I'm waiting to see if it goes away. >>Like you I am interested in others' experiences of treating endo with >>Mirena... >>Cheers. > HI, I had the mirena IUD put in for one year, and YES I could feel it in there the whole time! Turns out it didn't stop my ovarian cysts from forming or do much for my endo either. IT did help the pain a little, and the flow was slower. I had it removed about a year later right before another lap. During that year i'd started to get IC, not sure if the IUD facilitated that or not. I just found the IUD to not be my best experience in my treatment. A year and a half ago, I was put on Yasmin 28 birth control and OMG it's fantastic!
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