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Re: What's the Deal?-Kristen
From: Alyson (anonymous@obgyn.net)
Wed Oct 5 15:55:32 2005
Thanks Kristen! Glad to hear that about the Aygestin too...keepin my
fingers crossed!
Alyson
At Wed, 5 Oct 2005, Kristen wrote:
>
>Alyson, Keep us updated! Your story is almost identical to mine...I
>don't want lupron and I'm not ready to have a baby...that pretty much
>rules out all of my options as well!! I was on Aygestin (progesterone)
>for 4 years...two of which were almost pain free so I hope that works
>for you as well!!
>
>At Wed, 5 Oct 2005, Alyson wrote:
>>
>>Kristen,
>>No problem...I've tossed those questions around myself. I certainly do
>>not want to invite more endo, adhesions and scar tissue. Part of the
>>reason I am having surgery again is that my pain drastically elevated
>>within months of my first lap to the point of being debilitating. My
>>last doctor did the lap for diagnostic purposes and it seems she was
>>very conservative with how she handled the endo when she found it. She
>>caughterized the implants that she found, which I have read is pretty
>>much the least effective thing to do. I've tried different birth
>>control pills, dietary changes, acupuncture, yada yada. My doctor
>>pretty much told me that I could get pregnant or go on Lupron, neither
>>are an option for me. So, I sought a second opinion with a well known
>>doctor in the area and that's how I wound up with the surgery scheduled
>>tomorrow. He really felt that since I am adamant about not doing Lupron
>>right now, that surgery is the only other option with any real
>>possibility of providing some relief. He's going to use CO2 laser
>>ablation, says it'll be more accurate, cause much less damage...then
>>he's putting me on continuous progesterone which should accomplish the
>>same thing as Lupron without the potetial side effects (i.e. no period
>>and no estrogen). I guess we'll see! I'll certainly keep you all posted
>>on how it all works out.
>>Alyson
>>
>>At Wed, 5 Oct 2005, Kristen wrote:
>>>
>>>Alyson, just a quick note...my doc advised that surgeries actually cause
>>>more harm then good sometimes because endo is attracted to incisions and
>>>the scar tissue...did the new doc mention why a second one only a year
>>>after the first was needed? I apologize if this is being nosy! And since
>>>you're scheduled for tomorrow not much you can do about it but I just
>>>worry that some docs are so quick to decide surgery...i totally agree
>>>that it's the preferred option..i've been begging for one for years but
>>>the docs keep saying that it's a last resort or if i want to try and get
>>>pregnant which isn't an option for me yet.
>>>
>>>Good luck tomorrow!! I hope it gives you relief! Kristen
>>>
>>>At Wed, 5 Oct 2005, Alyson wrote:
>>>>
>>>>Jennifer,
>>>>I am going in for my second lap tomorrow. I was quite shocked at the
>>>>need to do so, considering I just had my first one a little over a year
>>>>ago. I had absolutely no relief from that one at all what so ever. In
>>>>talking to my new doctor I think it may at times have to do with how
>>>>aggressive your surgeon is when they are removing the endo. For
>>>>instance, in my first lap the doc merely cauterized the implants she
>>>>found. That doesn't actually remove them, it basically scrapes off the
>>>>surface layer. The new doctor is using a CO2 laser to pinpoint the
>>>>lesion and get underneath the surface of it. I'm hoping that is going
>>>>to make a difference.
>>>>I also think that a good bit of it has to do with the patient. Each
>>>>person's body is different and each person's endo advances at a
>>>>different rate. I think the quicker your endo advances, the more often
>>>>you are faced with making difficult decisions about surgeries and drug
>>>>therapy. For me another surgery was a better option at this time than
>>>>Lupron, etc. It is a cruel game we are all forced to play with our
>>>>bodies in an effort to preserve our organs/fertility and ease our pain
>>>>and suffering.
>>>>I don't mean to sound like a bummer. This site is fabulous for talking
>>>>to other women and finding out as much as you can about all of the
>>>>aspects of the available treatments, and then it comes down to what we
>>>>think is the best option for ourselves. Good luck to you.
>>>>Alyson
>>>>
>>>>At Tue, 4 Oct 2005, Jennifer wrote:
>>>>>
>>>>>In reading these posts, I often find a common trend.
>>>>>Multiple laps and the return of endo -- quickly and often.
>>>>>Is this the experience for many of you?
>>>>>It worries me to have so many laps done for the scar tissue aspect alone
>>>>>and the return bothers me because of having children, and honestly,
>>>>>because the endo causes me pain with intercourse.
>>>>>What has been your guys' experiences?
>>>>>What treatments have worked/ haven't?
>>>>>I worry about these things, esp. since my pain still seems to be there
>>>>>after the lap.
>>>>>Any comments are much appreciated.
>>>>>Have a nice night.
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