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Re: About endo bracelet, my surgery, the patch, and to all.
From: Jennifer (anonymous@obgyn.net)
Wed Oct 5 15:37:26 2005
Glad you made it through the lap, my pain was the worst from the gas in
my chest too.
I hope you continue to improve as the days go by.
And also just wanted to let you know, I also ordered the wristband
packet yesterday, hope to get them soon!
=)
At Wed, 5 Oct 2005, PennyDoll wrote:
>
>Well, had my surgery yesterday. Found out i have the worst stage endo.
>It was attatched to my bowels and what not. They drained my cyst, and
>got all the could. I only had a lap, so 3 incisions. Didn't lose my
>ovary, tube or anything else which is great. They almost admitted me
>cause the dumbass nurse didn't realize that a small dose of morphine or
>something after surgery wasnt helping me. Very rude, I mean didn't let
>anyone in to see me, didn't give me privacy by shutting the curtain
>while trying to use a bedpan, and was loud and sooo rude. But the rest
>went ok. Glad I didn;t lose anything else. I will be put on Synalrel
>soon. (I think that's how you spell it. It's the nasal version of
>Lupron, but less side affects. And you can stop at any time if you get
>adverse side affects. Unlike the shot that is in you for good for 3
>months.) But anyways, I was in huge amounts of pain, and I have a new
>patch on, and taking perc 10's atm to help. I also went out and got
>Phazyme, Malox gas relief, and gas drops for the gas they put in you.
>Last night it was horrible, but feel a little better today. Helping
>with the bloating, and horrible pain in my chest is almost gone. So
>that's good. My hubby was great. So was my mom. About you guys who
>asked about the patch, I never requested it. My new GYN that I love and
>did my surgery suggested it. They're meant for Opioid tolerant
>patients. (Ones who have taken other narcaotics for pain for a long
>time but hasn't helped. Im on the 3 highest dose cause of my tolerance.
>Check out http://www.Duragesic.com I think it is. There's 2 generic, but from
>what i've read, they suck. I love these. About Dr's not wanting to
>help with pain, gonna have to do what i've done for years. Keep looking
>for someone who takes you seriously and wants to help. Maybe even show
>em the info on the patch site. But only if your Opioid tolerant. And
>you've built up a tolerance. Show em you've done your research and you
>know what your talking about. Make a file to bring with you. It shows
>your serious. It helped me alot. But also does finding the right Dr.
>to take you seriously. Now, as for the Endo wrist bands, I ordered them
>just now. Go to http://www.endometriosisassn.org and click on BUY NOW torwards
>the top. It's 15 bands, a ribbon, and info sheets to hand out. I
>figured I may give em to my mom..try to sell them at her work as
>support, and to help with bills. I also asked the company when ordering
>in the box about suggestions, if they could send me a catalog, more
>ribbons, and more brochures to hand out. I also joined the club which
>helps you save $10.00 on the endo site, and more savings other places.
>But it's a great idea. I meant to post it to you guys a while ago, and
>was gonna order them. Maybe it can help with bills by selling them, or
>give to your family to show support, or whatever. As for now, im just
>relaxing and recouperating. Very sore. And to find out I have the
>highest stage of endo is scary. Which means it's not over. Prob use
>the Synarel to help slow it, talk about having a child with my husband
>eventually, but I think eventually I'll end up having more surgeries. Im
>looking on the bright side for now. I hope the rest of you are doing
>well, and I hope this helps with some of your questions. If not, email
>me. I've learned alot by myself, my awesome new Dr., and from people on
>here. The fight isn't over for me, but I'm working on it. So don't
>give up. Do research, know what your doing, and show Dr's your not just
>some person faking pain. Or keep searching. I also did background
>checks on my Dr's by going on the Medical association site. I'll put
>the site up once I find my print outs. Til then, good luck to all.
>Thanks for your thoughts, and email me if you want more personal help.
>I'll try my best. Im 22 and proved people wrong, and got the help I
>needed. It is hard. But if you go about it the right way, you end up
>winning. Feel better all, I'm goin to rest my body and my stomache.
>PennyDoll27@aol.com or use AIM PennyDoll27
>
>--
>PennyDoll27@aol.com
>Kris
>
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