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Re: anyone with endo have ibs, bladder problems, pain during sex or intestinal problems?
From: anonymous@obgyn.net
Sat Oct 1 16:34:53 2005
Found this to be an interesting post. I was diagnosed about twenty two
years ago with endo. Had about five surgeries from adhesions and
partial hysto. Usually about every two years.I said I was done with
surgeries and would rather live with the pain. I haven't had any
surgeries for at least seven years. Now, I have stomach
problems,intestional problems,and my ovary hurts like hell. I also was
told I have a spot of endo growing on an external part of my body. I
was told it would dry up and disappear,but it has grown, and that was
two years ago. So, I guess all this is to much to take at once, so I
need to find relief again, at least for one or two of these symptoms. Oh
yeah, sex is always painful. The only thing that helps in that area is
to discover the one position that is not painful. end of that subject.
At Fri, 30 Sep 2005, Jennifer wrote:
>
>Yes, yes and yes!!!
>I first suspected I had new troubles when I began having pain with
>intercourse. I either have IBS or have the symptoms because of the
>endo. I also have fibromyalgia which causes a lot of symptoms like
>endo, but mainly fatigue and chronic pain.
>I was sent to a urologist to check for IC (intercystial cystitis sp?)
>but I don't have the urgency and frequency, although it sounds like you
>do.
>You may have that or the endo may be causing those problems.
>But my main trigger for seeing a gynecologist in the first place was the
>intercourse pain -- and sure enough, I had the lap Tuesday and they
>found it.
>I've also been diagnosed with gerd, but have very few obvious problems.
>The worst is the pain and the IBS symptoms.
>Looks like many of us can agree and understand what the other is going
>through -- seems like there is a link.
>Hope this helped.
>Jennifer
>
>At Fri, 30 Sep 2005, anonymous@obgyn.net wrote:
>>
>>Fri, 9/30/05
>>
>>All of your comments caught my eye. These symptoms have all been
>>sneaking up in stages & now I'm seeing that they may simply have been an
>>indicator of endo approaching. I found some help w/abdominal pain from
>>the ichelp.org website. They suggested Prelief (which you can get at
>>Rite-Aid in with the products for indigestion, etc.) And there is a
>>natural product called Cysta-Q that I haven't tried yet. Also fiber
>>capsules helped with the IBS. Wish I could be of more help but I'm in
>>the gathering info stage myself. I'm waiting for more sites that
>>address your/our concerns. Let us know if you find anything.
>>
>>At Fri, 30 Sep 2005, Tracey wrote:
>>>
>>>At Fri, 30 Sep 2005, zoe wrote:
>>>>
>>>>At Sat, 10 Jan 2004, Chris wrote:
>>>>>
>>>>>Hi, I have had problems with ulcer type pain, heartburn, and I have IBS
>>>>>with diarrhea. I can barely eat anything without extreme digestion and
>>>>>bowel problems. I have pain with sex, sometimes even for one or two
>>>>>days after. Along with a ton of other endo symptoms. I know my IBS and
>>>>>digestion problems are directly related to the endometriosis. I had a
>>>>>laparotomy for my endometriosis two years ago and they found that all my
>>>>>organs, including intestines were all stuck together by adhesions.
>>>>>Afterwards, I was totally amazed at how much I could eat without even a
>>>>>gurgle, no pain, no bowel problems, nothing. It was great. I hadn't
>>>>>gone to the bathroom normal in so long that I didn't even realize how
>>>>>bad I even was. It was great! Anyway, unfortunately, it has all
>>>>>returned, only worse this time. So far I have lost 14 pounds and I
>>>>>survive on practically the same foods every day because there are so few
>>>>>that don't make me sick. Of course I got the run around from all the
>>>>>doctors around here and have been left to live this way. None of them
>>>>>want to really bother with me, they all want to pass me on to someone
>>>>>else. To make a long story short though, through this website I learned
>>>>>that there are specialists (very few) out there who can handle these
>>>>>problems and I have an appointment to see one of them on Jan 22nd.
>>>>>You'll see his name plastered all over this forum and the internet. His
>>>>>name is Dr. Harry Reich. If you're interested, you can read about him
>>>>>at http://www.adlap.com. Like you, it took me a long time to put 2 and 2
>>>>>together. It's so hard to figure it all out by yourself. Anyway, I
>>>>>hope this has helped you. Feel free to e-mail me if you want to talk.
>>>>>
>>>>>At Sat, 10 Jan 2004, ashley wrote:
>>>>>>
>>>>>>my name is ashley and i was diagnosed with endometriosis when i was
>>>>>>19(22 now). i now have GERD, IBS with constipation, frequent
>>>>>>urination(40 times a day, pain during sex, and cramping. does anyone
>>>>>>else have the same problems with endometriosis? i am wondering if maybe
>>>>>>the reason i am having the intestinal problems and pain during sex is
>>>>>>that the endo is back. when i was 19 i had a lap and my dr said that it
>>>>>>was all over my bowel, bladder, and ovaries. i did the lupron for 3
>>>>>>months and had bad side effects so i stopped. i got pregnant 6 months
>>>>>>later. i didnt start having problems again until after i had my baby in
>>>>>>2003. i didnt put 2 and 2 together that it all might be related till i
>>>>>>found this site. let me know what you think.
>>>>>>---ash
>>>>>>
>>>>>>--
>>>>>>ashley rich
>>>>>>ash101881@yahoo.com
>>>>>>arkadelphia, ar
>>>>>>
>>> Hi Zoe~
>>> I was surprized to read all your symptoms with your Endo.
>>>I have all thee above symptoms too~ thought I was going nuts!! I was
>>>thinking I may have a few things going on besides the endo. I
>>>mean,...normally one would'nt think ulcer type pain would be related to
>>>endo!??
>>> and heartburn or gerd.??
>>>I hope your e-mail addy above is correct?? I'd like to e-mail you but
>>>will wait for the ok first.
>>>(out of common curtesy) :)
>>> Thanks for letting me know my off the wall pains are shared by others~
>>> Hugs
>>> Tracey
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