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Re: high ca 125- endo or ovarian cancer?

From: kami (anonymous@obgyn.net)
Fri Sep 30 18:09:53 2005


Roxanne~

Hello there. I had an elevated CA-125 when I was 25 years old. It was in the lower 100s, and my gyn did send me to a gyn oncologist. Mind you, I hadn't been diagnosed with endo yet. It turned out to be just endo and not cancer. The oncologist was in on the surgery "just in case". I had the severe symptoms like you as well...all the back pain, bones aching etc. They simply found a horrid case of stage IV endo when they got in there.

Hang in there, Roxanne. I have heard that endo often does elevate those CA-125 rates and indicates false positives often for cancer when in actuality, it's endo.

--
kami
>>>>Hello to all,
>>>>
>>>>I have been reading all of the posts and I was just curious if anyone
>>>>else has had a high ca 125 reading? mine was 112 - it went from 150 to
>>>>112- I had a 7mm cyst on my ovary and now it is gone..  so all of my
>>>>docs suspect endo and say that some of t he highest ca 125s they have
>>>>seen have been w/ endo then I read that high ca 125s are present in over
>>>>80% of malignancys!! given the way I feel...  back aches, bones ache,
>>>>headaches that never go away, pain in hip joints , swelling in abdomen,
>>>>odd pulling sensation in abdomen , odd leg and arm sensations- like a
>>>>numbness and it feels like someone is grabbing my arm...  does endo
>>>>really cause all of these symptoms?
>>>>
>>>>I am scheduled to have laproscopic surgery on the 11th of Oct - now I
>>>>wonder if a gyn/onc wouldnt be a better choice? anyone else having this
>>>>delima?
>>>>
>>>>Take care,
>>>>Roxanne





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