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Re: hysterectomy decision-met with doctor today...From: Sara' (anonymous@obgyn.net)Fri Sep 30 14:46:44 2005
At Wed, 28 Sep 2005, kristina wrote: > >First, let me say thank you , thank you, thank you to all of you who >have responded. >I have tried EVERYTHING except the Lupron shot. I will not do the shot, >because I had severe depression problems in my early 20s. My Dr. says >also that relief is very temporary, and the disease comes back, often >worse than before. I am 35, never married, no children. I have not had >an intimate relationship in a long time, because of this chronic pain, I >simply don't feel like it. I do grieve the POSSIBILITY of having >children being gone. That is the true grief. I do plan to adopt >someday. But I will never have the pregnancy experience, the experience >of childbirth, nursing or that bond. This grieves me. But, as my >doctor said, there is no way I could raise a child feeling this sick. He >said there is only a 6% chance of the endometriosis returning after the >hysterectomy. Any they could treat that with Femora? But it will be a >complete hysterectomy, tubes, uterus and ovaries. I didn't realize I >will be in the hospital a few days, and SIX WEEKS recovery at home. He >really thinks I am doing the right thing. I am tired of putting my life >on hold also, "until I feel better". He said he would put me on >estradiol, a natural estrogen afterward to ward off hot flashes. >Right now, I only have periods 1-2 times a year. The pain is constant >with no real relation to my periods. I have actually almost crashed my >car a few times, the pain got so intense. I have GI symptoms also. >It is of no help to talk to my mom or sis, they just manage to say all >the wrong things, they both had children. In fact, it is better if they >don't say anything, just be there. Believe me, this is a terrible >decision. Hi Kristina, It's me again.I just wanted to ask if you have had more than one opinion regarding the surgery.It's definitely worth it to get two or three other opinions before commiting to the surgery.I was just a little concerned when I read that the Doctor would consider putting you on estrogen replacement right after surgery, you really do need to wait for a few months after the surgery before starting estrogen otherwise any endo left behind (and there is usually some left, whether it's microscopic, or on areas where it can't be safely removed)the estrogen replacement "feeds" whatever remaining endo you have and you will continue to have problems with endo.You really should get other opinions first, and ask specifically about endo recurrance rates in relation to post-op hormone therapy. By the way the surgery recovery time is 6-8 weeks with restrictions on lifting, bending, etc. and you are out of work for that time period as well.If you have any questions feel free to ask. Sara' TAH/BSO on 7/7/05 for severe endo. and anenomyosis.
-- Sara'Fleming
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