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Re: anyone with endo have ibs, bladder problems, pain during sex or intestinal problems?From: Vanessa (anonymous@obgyn.net)Fri Sep 30 14:21:01 2005
At Fri, 30 Sep 2005, Tracey wrote: > >At Fri, 30 Sep 2005, zoe wrote: >> >>At Sat, 10 Jan 2004, Chris wrote: >>> >>>Hi, I have had problems with ulcer type pain, heartburn, and I have IBS >>>with diarrhea. I can barely eat anything without extreme digestion and >>>bowel problems. I have pain with sex, sometimes even for one or two >>>days after. Along with a ton of other endo symptoms. I know my IBS and >>>digestion problems are directly related to the endometriosis. I had a >>>laparotomy for my endometriosis two years ago and they found that all my >>>organs, including intestines were all stuck together by adhesions. >>>Afterwards, I was totally amazed at how much I could eat without even a >>>gurgle, no pain, no bowel problems, nothing. It was great. I hadn't >>>gone to the bathroom normal in so long that I didn't even realize how >>>bad I even was. It was great! Anyway, unfortunately, it has all >>>returned, only worse this time. So far I have lost 14 pounds and I >>>survive on practically the same foods every day because there are so few >>>that don't make me sick. Of course I got the run around from all the >>>doctors around here and have been left to live this way. None of them >>>want to really bother with me, they all want to pass me on to someone >>>else. To make a long story short though, through this website I learned >>>that there are specialists (very few) out there who can handle these >>>problems and I have an appointment to see one of them on Jan 22nd. >>>You'll see his name plastered all over this forum and the internet. His >>>name is Dr. Harry Reich. If you're interested, you can read about him >>>at http://www.adlap.com. Like you, it took me a long time to put 2 and 2 >>>together. It's so hard to figure it all out by yourself. Anyway, I >>>hope this has helped you. Feel free to e-mail me if you want to talk. >>> >>>At Sat, 10 Jan 2004, ashley wrote: >>>> >>>>my name is ashley and i was diagnosed with endometriosis when i was >>>>19(22 now). i now have GERD, IBS with constipation, frequent >>>>urination(40 times a day, pain during sex, and cramping. does anyone >>>>else have the same problems with endometriosis? i am wondering if maybe >>>>the reason i am having the intestinal problems and pain during sex is >>>>that the endo is back. when i was 19 i had a lap and my dr said that it >>>>was all over my bowel, bladder, and ovaries. i did the lupron for 3 >>>>months and had bad side effects so i stopped. i got pregnant 6 months >>>>later. i didnt start having problems again until after i had my baby in >>>>2003. i didnt put 2 and 2 together that it all might be related till i >>>>found this site. let me know what you think. >>>>---ash >>>> >>>>-- >>>>ashley rich >>>>ash101881@yahoo.com >>>>arkadelphia, ar >>>> > Hi Zoe~ > I was surprized to read all your symptoms with your Endo. >I have all thee above symptoms too~ thought I was going nuts!! I was >thinking I may have a few things going on besides the endo. I >mean,...normally one would'nt think ulcer type pain would be related to >endo!?? > and heartburn or gerd.?? >I hope your e-mail addy above is correct?? I'd like to e-mail you but >will wait for the ok first. >(out of common curtesy) :) > Thanks for letting me know my off the wall pains are shared by others~ > Hugs > Tracey Hi Everyone, I have all the same problems listed above too. I have had diarrhea since April, with vomiting, sometimes 20 times a day. I have lost over 25lbs since april and 45lbs in total. I urinate so many times a day and night that it is utterly annoying. I am always bloated and have so much gas...since April. I cannot drink milk or eat too much fruit (most days) as it causes such stomach cramps and diarrhea that I cannot function. I saw a Gastro specialist and he said I have IBS without even doing a colonoscopy or anything. Dr's are just passing me off from one dr to another and they all keep telling me that I just have to live with it. My Gyne says it cannot be related to endo and doesn't want to hear about those symptoms (even though early signs of ovarian cancer are excessive diarrhea, bloating, gas...etc). He said those types of symptoms are totally unrelated to any gyne issue...aaarrrgg. That is so frustrating. The gastro specialist doesn't seem to care that I've lost a ton of weight and fiber is not helping. I bruise so easily due to my body not being able to absorb my food. Sometimes (and this may sound gross) my food comes out whole 3 hrs after I eat it. He also doesn't seem to care that there is sometimes blood in my stool. I was also told by my company dr that I have a lot of symptoms of M.S. (the bowel and bladder issues could be M.S. related) but no one will send me to a specialist who deals with M.S. I am so frustrated. Every Dr I see tries to pass me off to another Dr and none of them take my symptoms seriously. I have seen so many specialists but have had no real tests done. I don't know what to do anymore. I can't live with this as the one specialist told me to. It takes over my life and dictates to me when I can and cannot do the normal everyday things everyone else takes for granted. Somedays I cannot even go outside because I may have an accident in my pants. I guess I am not alone. I am so sorry that anyone else has to go through this. This is no way to live.
-- Vanessa
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