|
Re: facial numbness and lupron?
From: Lori (anonymous@obgyn.net)
Fri Sep 30 14:05:12 2005
MJ,
You are welcome! I just wanted to mention as I was doing some reading up
on Lupron, I noticed one doctor who said that he believes that Lupron
can cause severe neuorological damage, so for your doc to think that the
numbness is totally unrelated, I don't know, sounds fishy to me. You
have only had 2 shots, so maybe I am just over reacting, but as far as I
am concerned, one shot is too much. I am sorry, but I have no good
things to say about that drug. Unfortunately both of us have taken it
and look at us now. I am thinking of you and good for you, you relax
and sleep in this weekend. Oh what fun! Take care of yourself and let
me know how things turn out after your appt. Best of luck to you!
Hugs~
Lori D.
At Fri, 30 Sep 2005, MJ wrote:
>
>Thanks Lori! Unfortunately, the drs office couldn't get me in today. At
>least for the moment the numbness has subsided. At the moment, the
>anxiety is 'just below the surface' if that makes any sense, although I
>have been battling it all day. The good news is I only have less than 2
>hours left of work--then the gym and home to my wonderful husband and
>spoiled rotten dogs.
>
>I am irked by the conversation w/ the nurse that I had this afternoon
>who called me back to say that she spoke w/ the dr and said that the
>numbness couldn't possibly be from the lupron and I should f/up w/ my
>primary care dr (although it's funny how started right after the 2nd
>injection). Then she said that I could still keep my appt for mon if I
>wanted to. Ummm, yea I want to! Whether or not this weird numb feeling
>is from the lupron or not, the anxiety IS and I want to see the dr. My
>husband said the same thing as you--that there is nothing wrong w/
>trying it and deciding that enough is enough. So, that's where it
>stands for right now.
>
>I will have a good weekend--I get to sleep in and relax.
>
>I hope I can get some satisfaction on mon at my appt.
>Thanks again.
>MJ
>
>At Fri, 30 Sep 2005, Lori wrote:
>>
>>MJ,
>>I am sorry that you are having such a hard time. I hope that the
>>doctors will be able to see you today.
>>I don't want to be miss negativity pants, but I don't like Lupron and
>>would strongly suggest that you get off of it. It can help or can't
>>help women with their symptoms, but it hides underneath our bodies and
>>doesn't show us what it is really doing to us!!
>>Don't feel bad or anything, you gave it a try and now you feel maybe it
>>wasn't the right choice and that is fine. I tried it and never ever
>>will again. I had no facts about it, the doctor said this is what we
>>are going to do. I didn't know all of the things it could do to me
>>either. Take care of yourself and I am sending warm wishes your way!
>>Hugs~`
>>Lori D.
>>
>>At Fri, 30 Sep 2005, MJ wrote:
>>>
>>>Ok, so has anyone experience any facial numbness w/ lupron? About a week
>>>after my 2nd shot I had a couple bouts of this numb feeling in my left
>>>cheek. It didn't last very long. Yesterday it was much more intense
>>>(although still not completely numb) and seemed to have spread a bit and
>>>lasted several hours. This morning it started again shortly after I
>>>woke up and within an hour of talking w/ the drs office has spread up
>>>around my left eye and across my nose and lips. Weird, huh? Still not
>>>completely numb, but definitely annoying!!! I just called the drs office
>>>back to let them know it was getting worse--they told me to do that. I
>>>have an appt on Monday afternoon w/ the re to discuss the other s/e
>>>(horrible anxiety and what was sporadic numbness--but now it seems to be
>>>getting worse.) Needless to say I have having a horrible time
>>>concentrating at work, (because I am worried there is something really
>>>wrong, not because I am having problems concentrating otherwise) but I
>>>am going to try--at least that will distract me, I hope!
>>>
>>>This really stinks! I am thinking the 2 shots of lupron will be it for
>>>me. I went into this after doing tons of research, so I guess I
>>>'should' have been prepared--I guess I was more prepared for stuff like
>>>hot flashes and mood swings, but I also knew that like anything it would
>>>effect me differently that anyone else.
>>>
>>>I hope the dr calls back soon--I hope they can get me in today, but I
>>>will probably have to wait until Monday.
>>>
>>>Thanks for listening!
>>>mj
|
|
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)