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Re: high ca 125- endo or ovarian cancer?

From: roxanne (anonymous@obgyn.net)
Thu Sep 29 19:54:55 2005


At Thu, 29 Sep 2005, Claire wrote: >
>Hi there, I had all those symptoms you described - every single one and
>I thought I had ovarian cancer or something horrid like that. Turned
>out just to be severe endo - I don't mean to sound flippant about endo,
>as its pretty awful for alot of woman who suffer with it - but it
>doesn't kill you, it can be managed, but everyone is different, and
>finding the right management treatment for you could take a little time.
>I've opted for the natural nutrition approach, and I feel fab now - my
>lap was 4 1/2 weeks ago, and I have been pretty much pain free ever
>since, except for today - period due tomorrow so I feel a bit
>uncomfortable but then my periods have never been a real hassle to me,
>it was just when I got all those constant aches and pains like what you
>described and they never went away..... I had my CA125 levels checked
>but I was too scared to ask my specialist but she never said anything to
>me so I presumed they were ok.
>I have also read that CA125 can detect cancer or endo. Good luck for
>your lap - let me know how you get on
>Claire
>
>At Thu, 29 Sep 2005, roxanne wrote:
>>
>>Hello to all,
>>
>>I have been reading all of the posts and I was just curious if anyone
>>else has had a high ca 125 reading? mine was 112 - it went from 150 to
>>112- I had a 7mm cyst on my ovary and now it is gone.. so all of my
>>docs suspect endo and say that some of t he highest ca 125s they have
>>seen have been w/ endo then I read that high ca 125s are present in over
>>80% of malignancys!! given the way I feel... back aches, bones ache,
>>headaches that never go away, pain in hip joints , swelling in abdomen,
>>odd pulling sensation in abdomen , odd leg and arm sensations- like a
>>numbness and it feels like someone is grabbing my arm... does endo
>>really cause all of these symptoms?
>>
>>I am scheduled to have laproscopic surgery on the 11th of Oct - now I
>>wonder if a gyn/onc wouldnt be a better choice? anyone else having this
>>delima?
>>
>>Take care,
>>Roxanne

--
Hi Claire,
thanks for the message- so you never knew your ca 125? how were you diagnosed?
What other symptoms did you have? did you have numbness anywhere? I have it in my groin area and in my side like its radiating... so weird! any headaches? were you as nervous as I am going in to surgery?
thanks for your reply:)
roxanne





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