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Re: high ca 125- endo or ovarian cancer?From: roxanne (anonymous@obgyn.net)Thu Sep 29 19:54:55 2005
At Thu, 29 Sep 2005, Claire wrote: > >Hi there, I had all those symptoms you described - every single one and >I thought I had ovarian cancer or something horrid like that. Turned >out just to be severe endo - I don't mean to sound flippant about endo, >as its pretty awful for alot of woman who suffer with it - but it >doesn't kill you, it can be managed, but everyone is different, and >finding the right management treatment for you could take a little time. >I've opted for the natural nutrition approach, and I feel fab now - my >lap was 4 1/2 weeks ago, and I have been pretty much pain free ever >since, except for today - period due tomorrow so I feel a bit >uncomfortable but then my periods have never been a real hassle to me, >it was just when I got all those constant aches and pains like what you >described and they never went away..... I had my CA125 levels checked >but I was too scared to ask my specialist but she never said anything to >me so I presumed they were ok. >I have also read that CA125 can detect cancer or endo. Good luck for >your lap - let me know how you get on >Claire > >At Thu, 29 Sep 2005, roxanne wrote: >> >>Hello to all, >> >>I have been reading all of the posts and I was just curious if anyone >>else has had a high ca 125 reading? mine was 112 - it went from 150 to >>112- I had a 7mm cyst on my ovary and now it is gone.. so all of my >>docs suspect endo and say that some of t he highest ca 125s they have >>seen have been w/ endo then I read that high ca 125s are present in over >>80% of malignancys!! given the way I feel... back aches, bones ache, >>headaches that never go away, pain in hip joints , swelling in abdomen, >>odd pulling sensation in abdomen , odd leg and arm sensations- like a >>numbness and it feels like someone is grabbing my arm... does endo >>really cause all of these symptoms? >> >>I am scheduled to have laproscopic surgery on the 11th of Oct - now I >>wonder if a gyn/onc wouldnt be a better choice? anyone else having this >>delima? >> >>Take care, >>Roxanne
-- Hi Claire, thanks for the message- so you never knew your ca 125? how were you diagnosed? What other symptoms did you have? did you have numbness anywhere? I have it in my groin area and in my side like its radiating... so weird! any headaches? were you as nervous as I am going in to surgery? thanks for your reply:) roxanne
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