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Re: Endometriosis and fatigue
From: Sudsey (anonymous@obgyn.net)
Thu Sep 29 18:25:58 2005
I too struggle with fatigue and tried all sorts of things to help like
more sleep, vitamins, eating healthier, even sleeping pills, to no avail
I'm still dragging myself around and some days are so bad it reminds me
of comming down with the flu. I get anything and everything that's
going around and it happens to last for a month too. If I get a head
cold I get a sinus infection, then it gets in my chest and stays for
forever. I'm not on pain meds or anti depressants to blame it on. Alot
of family go o you must be depressed as depression can cause fatigue. I
tried an anti depressant like 6 yrs ago to feel like a walking mummy I
hated it.
Interestingly my husband went through terrible fatigue and day time
sleep spells and was just diagnosed with Narcolepsy after two night time
and one day time sleep study. He's now on meds to help combat the
fatigue. I looked at him with puupy dog eyes lucky you mines supposidly
all in my head. ( rant) Of course he's already gotten those skeptics
out there who do not believe in such a disorder. Guess we got something
in common now.. GRRRR.. Why can't I have some pep pills too??? LOL..
My fatigue was once only with my periods and PMS but lately it's daily
which I am totaly not tolerating too well b/c I'm not being a productive
person and the guilt of that is crushing..
Hugs
Sudsey
At Thu, 29 Sep 2005, shona wrote:
>
>At Wed, 31 Mar 2004, SH wrote:
>>
>>I'm right there with you. My husband teases me because of how early I
>>go to bed. He'll say "It's 8:00, past your bedtime". And I can sleep
>>for 12 or 13 hours and it's the same as if I slept for 2. I think it's
>>a combination of all my pain medication, the fact that have no appetite
>>a lot of the time, and of course, the pain. It's definitely real, I can
>>testify to that.
>>
>>At Tue, 30 Mar 2004, Heather wrote:
>>>
>>>At Sat, 27 Mar 2004, Michelle wrote:
>>>>
>>>>I was just wandering if anyone else out there has chronic fatigue? I
>>>>have had this disease (or at least known I've had it for 2 years.) I am
>>>>28 years old, and I feel like my life is lacking because I am always so
>>>>tired. I talked to my doctor and he feels it's the anti-depressants I
>>>>take, but I've been on them in years past and been ok. I guess in his
>>>>mind all that endo is is pain. Pain is not always my worst symptom.
>>>>It's fatigue, bloating, allergy problems, and I get sick so easily. Does
>>>>anyone else out there have these problems? I am getting so frustrated
>>>>because most people look at me and think that I look healthy, so I must
>>>>be faking. It's very hard having such a debilitation disease that is
>>>>invisible to the naked eye. I'm am just curious if it's just me, or if
>>>>a lot of endo sufferers have these symptoms. Any input on how to have
>>>>more energy would be greatly appreciated.
>>>>
>>>>--
>>>>Michelle
>>>>
>>>Michelle,
>>>I know how you feel. I am always exausted. I am not on anti
>>>depressants so i think it's the endo that does it. I have only knowm
>>
>>>about it for a month but I have had chronic fatigue for about 4 years
>>>and lots of pain. I don't always have a "Reason" for being so exausted,
>>>so like you say every one thinks I am faking it or I want attention. It
>>>really irritates me because I am 27 years old, i am not a child who
>>>needs to fake an illness to be petted. I really don't need attention. I
>>>just want someone who will listen to me talk about how I feel and not
>>>say I think it's all in your head you read too much. I wish people
>>>understood how dibilitating this disease is without actually having to
>>>suffer through it, because i would not wish all of this on my worst
>>>enemy. I also read somewhere that Fibromyalgia/chronic fatigue syndrome
>>>has been linked to endo, the endo triggers it some how I think. You can
>>>ask your Doc,but they usually don't see fibromyalgia as a real disese,
>>>so it may take a specialist. My aunt has it. Do your muscles and
>>>Joints ache like when you have the flu, for no reason at all? That is
>>>one of the main symptoms of fibro/chronic fatigue. I only know this
>>>because my aunt has it and she told me the symptoms so I could talk to
>>>my doc about it if I had them.
>>>Any way you are not alone in the fatigue department and even if everyone
>>>else thinks your faking I know your not, because I have it too.
>>>Heather
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