ENDO Messages for September, 2005: Re: endo burned out and no further treatment?

Re: endo burned out and no further treatment?

From: Sudsey (anonymous@obgyn.net)
Thu Sep 29 13:22:38 2005

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I guess that is good news and how awesome to be out of pain.. Endo in my experience always comes back and hence why no medical professional or even researcher has been able to slap down on the table the actualy cause yet only a half dozen theories that for one reason or another haven't moved past that theory table. How it gets there to begin with is the cause and the only sure fire cure. They can cut it out burn it off and what not but where it came from to begin isn't being resolved which I think is my biggest frustration with Endo above even the pain. My doc said I removed it you;ll be good to go wont come back. Well I knew better after researching it to death that first month and yet he assured me. No pain for 3 whole glorious months to have it come back mild then increase and I went back and he looked at me like I'd just developed a new head. It shouldn't have come back as if now I'm suddenly a liar over what I know and feel in myself is real. Again it was removed and again I'm told wont come back I was real good and washed it all out so well. I should have known not to fall for it. 3 months again la la pain free loving it and then bam here we go again and he refused surgery on me. Gee thanks.. 9 years of Endo taught me that not all docs know it all nor do they willingly tell you lies they too are often missinformed which isn't their fault 100% but I get upset when I'm telling them hello I hurt it's back and I'm not listened to. I think sometimes we need to learn as the patient to inform them with real and true medical documentation and medical journals where they are wrong and beg them to get knowledgeable so they can help us and don't question us. Now how one goes about all that without confronting one angery doc in the end I'm just not so certain. I tried to inform my doctor there is something called Post tubal ligation syndrom to face a very upset doctor and this year while surfing medical journals there it was post tubal ligation syndrom and it's whole nasty reality yet 9 years ago my doc said you just never know who's giving the information behind those wed pages and it's all lies. Ok so what do I show back up there today and toss a medical journal at him and say and it was all lies huh? As tempting as that is it would be so out of character of me to do such. It's truely up to you as the patient to say I'm not so comfortable about the wait and see game and if met with resistance seek a second or a third opinion if you must. It's about you not the doctor but how you plan to deal with the Endo b/c in the end that doctors not in the pain over a decision she's made for you, you will be. Sometimes finidng the right doc you are confident in and who you have ease of conversation with can make all the difference. We pay them for their service remember that. If I'm shelling it out I want what I deserve as far as respect to be listened to and taken seriously when I'm in pain or not feeling my best. I don't like when docs compare my symptoms or disease to any other endo Patient b/c this disease is different in each of us and we deserve to be treated that same way. I'm so happy your pain is gone and I hope it stays gone for you but talk to your doctor and express your concerns and go on from that point with what you feel is best for you.. hugs Sudsey

At Thu, 29 Sep 2005, Lisa wrote: >
>Ok,
>I have had an easy time compared to most of you. I have had alot of
>pain and frustration but during a recent lap I found out I had endo. I
>had my follow-up today and my doc says that she burned all of it out (4
>areas?) She said there is no need to do anything furhter unless I start
>having symptoms again. I was all ready for her to do some type of
>treatment so it didn't happen again. Is it normal to just let it go
>now? Has anyone else experienced this? I don't want to get back where I
>was. I guess I am feeling lost. Please let me know what you all think.
>Thank you

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