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Re: any advice-suggestions?
From: Trisha (anonymous@obgyn.net)
Thu Sep 29 04:08:09 2005
Lori, thanks so much for responding! I'm real sorry you are going
through all that you are, it is really hard to have hope with Dr.'s when
all you have heard is that the pain is in your head and your a junkie,
so on and so on. I'm definalty scared of the Lupron, I have a friend
who has fibro and seeing all that she has gone through, I don't even
want to take my chances. Besides, At this time I am not in a position
to get pregnant or wouldn't it make more sense if I was ever to consider
taking it to take it when I was wanting and ready to get pregnant? I
don't know-I read your other post and I just might try the natural
progesterone cream, I just wish their was some way, instead of surgery
to tell just how well the treatment you are using is working? Like I
said, If I have just a little bit of pain that doesn't tell me how fast
it's growing-am I making sense? I guess all that I can do is do what I
feel is right for me and then pay enough attention to my body to see if
it trys to tell me it's not working. I always knew what endo was, but
man, I NEVER knew how much it does to a women, how much it can change
your life. Thanks again Lori and please try to keep in good spirits-I
know it can't be easy but someday, someday, it WILL get better and I
wish that day comes sooner for you than later!
At Tue, 27 Sep 2005, Lori wrote:
>
>Trisha,
>I will tell you that I have experienced both Lupron and cbcp and I had
>no sucess with either. It doesn't mean you wont, but I didn't and my
>body just can't tolerate it. Anyways, I don't like Lupron one bit. I
>am not sure of the website that talks of fibromygilya (sp) and lupron,
>but I am sure that someone who reads this will be able to give you the
>info. There is a girl who posts, her name is Sudsey and she has
>researched Lupron and the FDA. The FDA only recommends that one person
>should only have 2 shots of Lupron in their LIFETIME. That is steep and
>they do know what they are talking about. Now why they recommend that,
>I'm not sure, maybe Sudsey knows, or maybe it doesn't explain why, but I
>am under the impression that it is some potent stuff. It messed me up
>in many ways and I don't like the drug. There are many who have sucess,
>but you are correct it only supresses. I am not exactly sure on bcp,
>but I am under the impression that is supresses and maybe haults endo
>from growing (but don't quote me on that) I have not had any medical
>attention for my endo. for 5 years. I guess I have given up on the
>medical field. I keep thinking that one day I'll go back to a doc. for
>it, but I am not doing it yet. I have built up some sort of tolerance,
>but yet I live with a lot of pain. Don't know what to say to you for
>sure, but do your homework, which it sounds like you are already doing
>and many will have some websites or info. for you that I just don't
>have right now. I do have a lot of sympathy for you and will show my
>support. Best wishes!
>Hugs~
>Lori D.
>
>At Tue, 27 Sep 2005, Trisha wrote:
>>
>>Hello all. As you may remember I had my first lap not long ago and am
>>due in about a week for my post op where my Dr. is hoping I will go
>>ahead with the Lupron, I think he's gonna be dissappointed! My question
>>is this, since I'm new to this whole endo thing, I would like to try
>>continuous BCP which I realize only work for some but, from my
>>understanding, Lupron can shrink your endo implants and then stop them
>>from growing but when you get off of it they will most likely start
>>growing again, is that right? Well with bcp, they are supposed to keep
>>the endo from growing also but does bcp shrink the implants? How many of
>>you have had good success with using cbpc and keeping the endo at bay?
>>And what exactly is the difference between endo and adhesions? I had
>>both I guess. Is there one that is worse to have than the other? I
>>guess my Dr. did not get all of the endo which I am not happy about and
>>am anxiously waiting to find out how much and where, and to make sure
>>the stuff was excised. If they excised the endo, arn't their a few
>>different methods to excise the endo? Well, any answers or help you can
>>give me is great! Also, does anyone know the site where it says that
>>Lupron can cause Fibormyalsia? I would love to print that and bring it
>>to my post op. Thanks again and I wishing you all better days to come!
>>Take care!
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