ENDO Messages for September, 2005: Re: high ca 125- endo or ovarian cancer?

Re: high ca 125- endo or ovarian cancer?

From: Claire (anonymous@obgyn.net)
Thu Sep 29 03:49:01 2005

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Hi there, I had all those symptoms you described - every single one and I thought I had ovarian cancer or something horrid like that. Turned out just to be severe endo - I don't mean to sound flippant about endo, as its pretty awful for alot of woman who suffer with it - but it doesn't kill you, it can be managed, but everyone is different, and finding the right management treatment for you could take a little time. I've opted for the natural nutrition approach, and I feel fab now - my lap was 4 1/2 weeks ago, and I have been pretty much pain free ever since, except for today - period due tomorrow so I feel a bit uncomfortable but then my periods have never been a real hassle to me, it was just when I got all those constant aches and pains like what you described and they never went away..... I had my CA125 levels checked but I was too scared to ask my specialist but she never said anything to me so I presumed they were ok. I have also read that CA125 can detect cancer or endo. Good luck for your lap - let me know how you get on Claire

At Thu, 29 Sep 2005, roxanne wrote: >
>Hello to all,
>
>I have been reading all of the posts and I was just curious if anyone
>else has had a high ca 125 reading? mine was 112 - it went from 150 to
>112- I had a 7mm cyst on my ovary and now it is gone.. so all of my
>docs suspect endo and say that some of t he highest ca 125s they have
>seen have been w/ endo then I read that high ca 125s are present in over
>80% of malignancys!! given the way I feel... back aches, bones ache,
>headaches that never go away, pain in hip joints , swelling in abdomen,
>odd pulling sensation in abdomen , odd leg and arm sensations- like a
>numbness and it feels like someone is grabbing my arm... does endo
>really cause all of these symptoms?
>
>I am scheduled to have laproscopic surgery on the 11th of Oct - now I
>wonder if a gyn/onc wouldnt be a better choice? anyone else having this
>delima?
>
>Take care,
>Roxanne

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