ENDO Messages for September, 2005: Re: 24 and scared

Re: 24 and scared

From: Terrya (anonymous@obgyn.net)
Fri Sep 23 11:33:35 2005

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Previous message: Lori: "Re: 24 and scared-- To Ruth"
In reply to: ruth: "Re: 24 and scared"

Hi Ruth, I am 23 and have been diagnosed for about a year and a half. I think I have had endo for about 4 years. First of all...a hysterectomy is not a cure for this disease. People have hysterectomies and still suffer with endo pain. Have you researched on the internet about endo. There is a lot of good information out there. 2nd...is your doctor a regular OBGYN or an endometriosis specialist? I have seen 4 doctors for this disease and have finally found a specialist in my area. His practice is dedicated only to treating pelvic pain. He does not do regular GYN issues or OB. Doctors like this are much more knowledgable about endo. Unfortunately most people don't understand this disease including most doctors. I would recommend finding a specialist ASAP. 3rd...It seems that the most effective treatment for endo is excision surgery. This can be done either through an laparoscopy(tiny excisions using a camera to see inside) or a laparotomy(full open abdominal incision). I have had 2 laparoscopies with a regular OBGYN in which my endo lesions were cauterized (burned) not cut out. These provided minimal relief which is probably why I had surgery 2 times within 6 months. But this was before I decided to take things into my own hands and look for info for myself. You have to be knowledgable about the disease and treatment options and find a doctor who will listen to you and help you make the right decision for you. This is a great place to start. A lot of people on this board have been dealing with the disease for a while and are very knowledgable and everybody is nice. You can e-mail me if you ever want. I hope you feel better soon. Keep in touch. :-)

At Fri, 23 Sep 2005, ruth wrote: >
>Thank you so much i have this for 4 years and now they finally decided
>to treat me, and the treatment seems worse than the deisease it makes me
>so depressed and i have so much anxiety, i am really consisdering
>getting off of this and having a hysterectomy, thanx though, how do you
>deal with endo?
>At Fri, 23 Sep 2005, Lori wrote:
>>
>>Ruth,
>>Sorry that you are dealing with this. I am 26 and I was on lupron when
>>I was 19. Didn't like it and I didn't like the side effects and it
>>didn't help me at all so I don't have many things to say that are good
>>about Lupron. Maybe you should ask your doc. if there is anything else
>>you could take. Endo is such a frustrating disease, like so many
>>diseases, it doesn't have a cure, but only treatment options that
>>unfortunately don't work for many of us. I am sorry that you have to
>>deal with this and think about it so often. I do understand and I am
>>here if you need to talk. Take care!
>>Hugs~`
>>Lori D.
>>
>>At Fri, 23 Sep 2005, ruth wrote:
>>>
>>>I am 24 years old and i have endo. i dont know what to do this medicine
>>>lupron depot is making me crazy, it is a medicine that enduces
>>>menopause, i dont feel like my self, i am depressed, and its scary, i
>>>feel sick all of the time, im cold all of the time, i dont know what to
>>>do, i just wish this wasnt going on, does anybody know how i feel

Next message: Terrya: "Re: How many surgery/Laps Have you had?"
Previous message: Lori: "Re: 24 and scared-- To Ruth"
In reply to: ruth: "Re: 24 and scared"

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