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Re: Endo + Kidney Pain = No Fun (and my story)
From: Alyson (anonymous@obgyn.net)
Mon Sep 19 20:02:18 2005
Lauren,
Kidney pain goes hand in hand with my daily pain. I have had chronic
pelvic pain associated with my endo for the past year and it typically
starts in my lower back/kidney area. Since I've been on the pill that
entire time I can't say with any certainty that it isn't due to the
pills. I am on Seasonale (pills straight for 3 months, then a period).
I've done a good bit of reading and the back pain seems to be a fairly
common symptom that goes along with endo. I hope that your doctor can
give you some answers.
Alyson
p.s. I was seeing a female doctor and am actually having a much better
experience with my new doctor, who's a man. He's been great.
At Mon, 19 Sep 2005, Lauren wrote:
>
>I'm new to the site so I'll give you a little background info first. I
>have been dealing with endo since my first period at age 13. My mother,
>2 aunts, grandmother, and a cousin have all had hysterectomy's due to
>endo. From my first period I knew that I wasn't like the rest of the
>girls in school. I couldn't do anything when I was on my period, except
>try tirelessly to find a comfortable position and cry. I would try to
>go to school, I would take a few steps and double over in pain. I have
>a pretty decent pain tolerance. I have broken multiple bones, a knee
>dislocation, and a few other odd injuries... but the pain never really
>bothered me to much. It was just that one week a month that tore me to
>pieces. The older I got the worse the pain. I was hospitalized once
>when I was 16 because of the pain. They gave me an IV, an ultrasound,
>ran some tests, a shot of demoral, and kept me over night for
>observation. The pain was so bad on the right side of my body I thought
>it was appendicitis. It hurt to bad to sit down, the pain was almost
>barable while pacing, but I was having trouble breathing. The doctors
>diagnosis "I don't know, but it seems to have subsided.. bring her back
>if she has any more problems". Lovely huh? I've been told that cramps
>are normal; take some tylenol or try midol if that doesn't work; that I
>have a low pain tolerance (I found that funny); and even "It's all part
>of the joys of being a woman". Yes, I am not making that up. After
>talking with a friend she told me about her cousin who just had to have
>surgery for endo. My mother has always kept a physicians desk reference
>in the house, so I looked it up. It was a wonderful book with symptom
>checkers. I found the page on endo and as I started answering yes to
>the questions burst into tears. I'm not crazy. There really is
>something wrong with me. I'm sure you all know the rest of the story.
>Now, for the reason for my post. Recently I have been taking birth
>control pills continuously. I'm taking ortho tri cyclen. I've tried
>other pills, but these seem to work the best for me... and there's been
>no wait gain like I experienced with the other pills. I've been taking
>ortho for about a year and a half, and just started the continous pills.
>I'm on my 3rd month. I've got the normal breakthrough bleeding, which
>doesn't concern me too much. The past 2 months around the time that I
>should be having a period I have a lot of pain in my lower back, around
>my kidneys. When I noticed the pain last month I first thought that I
>slept weird, but then after moving around I realized it was my kidney
>area. I thought it was the start of a kidney infection, so I drank
>water and cranberry juice to flush out my kidneys, and the pain went
>away. I woke up yesteday morning in the same pain. I had one darvocet
>left so I took that last night, which helped ease the pain. I still
>have it this morning. I found this site through google. I searched for
>endo + kidney pain and found some posts from January of this year on the
>subject... which has helped. My question is: Has anyone else
>experienced the kidney pain from the bcp's, or in general?
>Thanks for being here
>Lauren
>P.S... I do have an appointment with my doctor, but my doctor is a man
>and I want input from other's with endo.
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