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Re: Anyone heard of intestinal endo?From: Trisha (anonymous@obgyn.net)Sun Sep 18 03:55:42 2005
Hello! I'm glad you found this site, there is so much info here and a lot of the women are so knowledgable! Plus it really helps to know there are people out there who experience what you are going through! I'm 26, just had a lap where I was diagnosed and treated for endo last Tuesday. Before this I had a regular exam and a rectal exam where a nodule was felt so I was pretty sure my Dr. was going to find something in that area. I had a colonoscopy and although it was normal, the nodule was noted at that time also. Well, lets just say I was terrified of the possible outcome of having endo on the intestines and tried to do as much reseach as I could. During my lap endo was found on both ovaries, cul de sac, bladder as well as some adhesions and my left ovary had to be detached from the pelvic wall. I could be wrong but what I understood from the research that I did is that if endo has invaded your intestine all the way through to the third, inner layer then the person would need to have a bowel resection. If you had endo in the inner most layer of your bowel it should have showed up on the colonoscopy. A person may need a colostomy bag if a large enough amount of their intestine had to be removed-in a resection of the bowel they remove the diseased portion of the intestine and then reattach the two healthy ends. Some people just need a temporary colostomy bag and there are many people who have endo in the bowel and they just ended up with a bowel resection and no colostomy bag. And of course endo can be on the bowel while only invading the top layer, not invading the innermost layer and I belive that can be removed without a resection or worry of a colostomy bag. For you knowledgable girls, if I am incorrect on any of this please correct me. I know it is very frusterating, not knowing and the worrying, I did the same thing, but you can't put yourself through that. If they didn't find endo in the inner most layer of your bowel during the colonoscopy that is something to be happy about, but it does sound that perhaps you do still have some endo after your laps. My best suggestion to you is to research intestinal endo in the archives on this forum, research to see if there is an endo specialist in your area or surrounding area that you could see and use this forum and the people here anytime you have questions, need to vent or are in need of support. I believe Dr. Cook who is one endo specialist has a great summery on bowel endo on his website, I think it is http://www.pelvicpain.com so check that out if you have time. I'm sorry that this is happening to you and it certainly is not easy but the people here understand and they are a wonderful help. Try to take care of yourself and know that we are here for you and will help you as best as we can. I wish you luck and pain free days!
At Sun, 18 Sep 2005, Erin wrote:
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