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Re: It just isn't right.....
From: Alyson (anonymous@obgyn.net)
Wed Sep 14 09:55:29 2005
Amanda,
Thank goodness, it sounds like there is someone listening to you now. It
is ridiculous and frustrating to go through so much work to find a
physician to do their job! I went through four doctors before I was
finally diagnosed and STILL had to change after that! I wish there was a
standard of care. I was recently told that if you need a good
gynecologist to see someone who specializes in that, because OBGyn's
just want to deliver babies and do gyno to pay the bills. For whatever
that's worth. Anyway, good luck to you!
Alyson
At Wed, 14 Sep 2005, Amanda wrote:
>
>Hi Alyson, I do have an appt. with a new general physician today. My
>gyno said that she will be able to help me with the pain, and if not she
>will get me to someone who will. I agree that she is being
>unprofessional about letting her personal life dictate what treatments
>to give or not give her patients. She is my second gyno as the first
>didn't believe me that I had pain, she said it was all in my head. I
>have called just about all the gynos in my area and the majority of them
>do not take my insurance, unfortunately. Because of the fact that I
>have endo and IC I am needing to take pain meds on a daily basis until
>the other treatments start working, and I have a right to be treated for
>my pain adequately and looked at on an individual basis. I understand
>the risks of pain meds, but I believe that if used properly when
>starting and stopping them, I will be just fine with the help of a
>physician. I just hope and pray that I get help soon, I don't know what
>I will do if I don't. Thanks for your response, take care and god
>bless...hugs..Amanda
>At Wed, 14 Sep 2005, Alyson wrote:
>>
>>Amanda,
>>Would it be worth it to seek a new doctor? Your doctor is not being
>>professional if she is allowing her personal life to dictate decisions
>>about your treatment. It is up to the physician to determine the right
>>amount and frequency to prescribe you. example- I get 30 percocet per 3
>>months. It forces me to use them sparingly, and is far from being
>>enough to get addicted on-but I have them available for the really bad
>>days.
>>Good luck,
>>Alyson
>>
>>At Wed, 14 Sep 2005, Amanda wrote:
>>>
>>>Since that incident I had to go to ER in so much pain and once again,
>>>treated like a pill seeker. They wanted to give me Tylenol 3 and I
>>>informed them that codeine can cause pelvic congestion and constipation
>>>exacerbating symptoms of endo, and women with endo are not recommended
>>>to take it. He laughed at me, literally, and said "where did you get
>>>that info??" I told him endo-resolved.com, and he then said hmmmmm I'll
>>>have to check that one out, never heard of that before. As he was
>>>chuckling. I swear, they look at us and see we don't have a broken arm
>>>or leg and aren't bleeding from the head so they think we are not in
>>>pain. GET A CLUE!!!!! Thanks for your response, it is so unfortunate so
>>>many of us get treated that way. Take care and god bless, Amanda
>>>At Tue, 13 Sep 2005, anonymous@obgyn.net wrote:
>>>>
>>>>Amanda,
>>>>I am so so so so so sorry I get the exact same treatment at my local
>>>>hospital. It is so sad.... It really is hard because I end up going
>>>>home crying every time in pain saying they dont believe me....Its hard I
>>>>have to tell myself every day that someday there will be a cure or
>>>>someday it will get better or someday I will find a dr that will
>>>>listen,care and treat me and give me something for my pain at the very
>>>>least without making me feel like a pill seeker................
>>>>
>>>>*hugs and many prayers to you***
>>>>
>>>>Donna
>>>>
>>>>At Wed, 7 Sep 2005, Lori wrote:
>>>>>
>>>>>Amanda,
>>>>>Man alive girl, I can not believe those doc's in the ready care said
>>>>>that to you. The sad thing is I can kind of believe it, but yet I
>>>>>can't, do you understand my weird mumble jumble. Anyways, that is awful
>>>>>and I am sorry that you had to hear that. Doctors are supposed to help.
>>>>>For goodness sakes, if they don't want to give medication for pain then
>>>>>they better figure something else out, right? I agree with you, you
>>>>>should right the state medical board. I went to the hospital and made a
>>>>>complaint and now the doc is under and investigation. I will let all
>>>>>know how that turns out. This particualar incident didn't have anything
>>>>>to do with endo, but it did risk the life of my children, one who died
>>>>>at 6 hours old and one who was sick. The doc took it as a serious
>>>>>illness, but wasn't going to do anything and the next day my family doc
>>>>>told me it was just a childhood sickness and my boy would be okay and
>>>>>told me what I could do to make it better and now he is fine, but the
>>>>>E.R. doc told me it could be a maligment cancer so I was freaking out
>>>>>all night thinking something was wrong with him. Anyways, this story is
>>>>>all over the place. I got off the track. Just wanted to show you that
>>>>>yes, you are right and doctors can be very wrong and very insensitive. I
>>>>>hope you prevail. Stand strong girl. Best wishes.
>>>>>Hugs~
>>>>>Lori D.
>>>>>At Tue, 6 Sep 2005, Amanda wrote:
>>>>>>
>>>>>>Why, in this day and age, should anyone have to suffer in pain every
>>>>>>day?? I have endo and also interstitial cystitis, and there are
>>>>>>treatments out there, but all of the docs I've seen so far have not been
>>>>>>willing to dedicate more than five minutes of their time to help find a
>>>>>>treatment that works for me. Apparently, it's too "time consuming."
>>>>>>With both of these diseases, you have to find what works for you, which
>>>>>>includes time, trial and error. I am at my wits end trying to find
>>>>>>someone who will work with me and help improve my quality of life. With
>>>>>>the technology we have now a days, and the medications that are out
>>>>>>there, why should anyone have to live like this?? In pain all the time??
>>>>>>These diseases have ruined my life so far. I cannot concentrate at
>>>>>>work, I am so afraid of eating things because of the IC, I have
>>>>>>absolutely no social life b/c all I want to do is lay in bed!! And sex
>>>>>>life, it doesn't exist. To me...this is not right. I am 25 years old,
>>>>>>and it seems so far that these docs are unwilling to treat my pain b/c I
>>>>>>am so young and b/c of their views on pain medication and everything
>>>>>>else. It is unfair and I am appalled that the medical profession has
>>>>>>treated so many of us so poorly. We have just as much right to be
>>>>>>treated for pain and to get it under control as any other human being,
>>>>>>at any age. So what can we do about it?? I personally am writing to my
>>>>>>State medical board and letting them know my experiences in the past 4
>>>>>>months with endo and IC and how rudely I have been treated by each
>>>>>>doctor. Quick story, just Sunday I was in so much pain, went to the
>>>>>>ready care crying and hunched over, told them what I had and that I
>>>>>>needed pain relief. They gave me 15 low dosage darvocet and said to me,
>>>>>>"you need to see your physician about this and the next time you come in
>>>>>>here asking for pain relief, you will be marked as a pill seeker." Sorry
>>>>>>this is so long guys, but I am fed up with the docs in my area and
>>>>>>nobody understand more than you do. Take care everyone, hugs to all of
>>>>>>you:) Amanda
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