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Re: endo and cysts and acupuncture
From: Alyson (anonymous@obgyn.net)
Mon Sep 12 09:28:38 2005
I understand the $$ issue. That's what has kept me away for the past
several months. My insurance offers a discount, but even that isn't
very helpful to the pocket book. I don't blame you on the hysterectomy
issue either. I get frustrated that so many of us are forced to think
about that option at such a young age. My acupuncturist that had endo
was able to keep hers at bay long enough to have children, but she did
end up having to have a hysterectomy at some point after that. I guess
maybe if nothing else the treatments may buy you more time before you
have to make such a final decision.
I actually had not ever heard of the "bowel prep". I'll have to look at
those postings.
Good luck,
Alyson
At Mon, 12 Sep 2005, Stephanie wrote:
>
>Thanks for the reply Alyson, I have had 3 treatments now, which seems to
>have helped a bit, the pain seems to be done a partial notch. However,
>the $$ is adding up awfully fast with me not sure about the ability to
>avoid future surery. Of course the idea of a hysterectomy does not
>thrill me, but i have such a mass of adhesions I'm unsure of what, if
>any, good the acupuncture can do for that particular problem.
>I just read some replys about bowel preps and they scare the, well,
>crap, out of me (forgive the pun!) - i did not have to do a prep for
>either of my previous surgeries but was warned that I would likely have
>to do so this time. The idea of having surgery then continuing to have
>pain scares me too. Dr M says she has not had anyone in her practice
>have that happen, all her patients have been so very glad to have done
>it...
>Anyway, now I'm blabbing, pain'll do that I guess...
>Stephanie
>At Thu, 8 Sep 2005, Alyson wrote:
>>
>>Stephanie,
>>I saw an acupuncturist for about 8 months and am getting ready to start
>>back. One of the women who attended to me is an endo "survivor"
>>herself. They gave me a couple of different herbal concoctions meant to
>>help relieve "stasis" and "pain in the lower region". I found that it
>>helped with my periods in the sense that they were lighter, less
>>clotting, shorter, and a bit less painful. From my experience their
>>approach is more whole body and pain management. They likely will not
>>attempt to "cure" the adhesions, but manage the state of your body to
>>deal with the pain. I found that while I was seeing them my frequency
>>of pain decreased from almost daily to a couple of days a week. They
>>were seriously frustrated that I was still having any pain at all. I
>>also tried "cupping" while I was seeing them, which felt fabulous. I
>>think if nothing else having these women, one of whom had been through
>>it herself, attending to me and helping me relax for an hour a week did
>>wonders for what I was going through.
>>I haven't been seeing them for the past 4 months for financial reasons
>>and my pain has gone through the roof. I am going to have surgery again
>>at the end of the month and hope to start seeing them again as soon as
>>I've got the bucks. I'd be happy to share more info if you have any
>>more questions.
>>Alyson
>>
>>At Thu, 8 Sep 2005, Stephanie wrote:
>>>
>>>Well, I've read a few of your postings, but have been trying to do this
>>>on my own I guess. Seems that I may have met the end of the line so to
>>>speak regarding this disease and my ability to 'do it on my own' (I have
>>>had resources close to me, but they all know me too well).
>>>I was diagnosed with endo 2 years ago. I had a laparoscopy August 04
>>>and a laparotomy December 04. I was on Lupron in between. Then we
>>>tried Femara. The Lupron didn't do a darn thing, but the Femara was a
>>>wonder drug, for about 4 months, then 'it' came back (my pain is life
>>>altering, I can function, but barely and some things are just not going
>>>to happen). I have started trying acupuncture and the acupuncturist
>>>would really like me to start taking some herb mixes (it's 2 concoctions
>>>that are about 26 different herbs). My western md is conviced that we
>>>have tried absolutely everything and that there is only 1 more option,
>>>if you can call it that - a complete hysterectomy (she is sympathetic to
>>>my dilema). At 36 I am resistant to that option. The acupuncturist
>>>seems to think she can 'fix' me, but I have some serious adhesions going
>>>on. I can get my mind around how she can help the cyst that I now have,
>>>and the Endo, but I am not sure how she can fix serious adhesions.
>>>Anyone out there have any comments on the use of acupuncture and more
>>>especially the use of herbs?
>>>Thanks for any advice!
>>>Stephanie
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