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Re: support...Alyson
From: Alyson (anonymous@obgyn.net)
Fri Sep 9 07:22:15 2005
Awww, I had a similar experience with my mom when I was young. She
forgot to flush...I saw the aftermath, thought she was dying...ran
hysterically into her room crying and asking if she was OK. She kept
saying yes, and me being the stubborn individual I am, I wanted to know
how it was possible that she lost that much blood and she was telling me
she's fine. Ahh, young innocence.
Alyson
At Thu, 8 Sep 2005, Sudsey wrote:
>
>Alyson,
>I was laughing so hard at the vision of congress and talking those
>intimate details. O just when I need a good laugh too. Thanks. Isn't
>it funny where our thoughts lead sometimes. I will jot things down and
>go back to say o my goodness what planet was I on when that thought
>ravaged my head. LOL I remember back to the day those things were just
>unspoken you did not mention periods and all that and this disease broke
>that well taught rule my mom worked so hard to intill. I can remember
>those words provoking a laugh like it does when I mess up and say it
>around my boys. Mom... as if I've cussed what it's a body part o no
>your too young opps sorry..My youngest had his lesson on perdiods way
>young I had him hunting me down all the time did not matter if mommy was
>in the bathroom or tub he barged in what's that eww mommy your hurt. Ahh
>get out no I'm fine get out...Dad mom's hurt real bad blood like I was
>dieing my husband came storming in o thanks needed an audience guys..
>LOL I'd have locked the door but my son had a bad thing of locking
>himself in there so we took it off b/c I was tired of going nuts trying
>to jam that door open to get to him unlock the door what huh...
>hugs
>sudsey
>
>At Thu, 8 Sep 2005, Alyson wrote:
>>
>>Suzanne,
>>Its so interesting that you brought up the 'famous people' aspect. I've
>>actually found myself wondering when watching TV lately "does she have
>>it, do any of these women have it?"
>>I think women's health has long been put on the back burner. I mean how
>>long did it take before it was OK to talk about Breast Cancer? There are
>>alot more resources these days, but the insurance companies and medical
>>world in general still don't consider it so important. I've
>>thought...how interesting would it be to have congressional hearings
>>about endo. Can't you just imagine all of the men and even our female
>>congress women squirming in their seats as witness after witness sits in
>>front of the microphone talking about heavy periods, bleeding, clotting,
>>rectal pain, diarrhea, bladder pain, sexual discomfort, ovaries, etc.
>>They would be mortified. Its not sexy to die of cancer, or AIDS, MS,
>>Parkinsons, but its sexy to try to save the ones that do. Again, as you
>>mentioned, you can see it. We had two hurricanes where I live last yar
>>right after I had my lap. My husband and I went to his parents house to
>>help clean up. They handed me a pair of gloves and pointed me to the
>>pile of branches I needed to pick up. Heck I looked fine, why not? I
>>thought I was there just to sweep or put away dishes.
>>I'd like to see those hearings happen. I'd like to sit in front of
>>those people and ask why we can't make this as much of a priority as
>>Diabetes, or MS. I think it would be pretty amusing.
>>Alyson
>>
>>At Wed, 7 Sep 2005, Sudsey wrote:
>>>
>>>I think it can be so difficult for family and friends to begin to
>>>understand a disease that has no outward signs. When we think of other
>>>diseases often times there is some outward sign and more public
>>>awareness for things like heart disease / cancer and that promotes the
>>>recognition and understanding that I think alot with endo have not been
>>>able to recieve. You have Endometriosis and many will look crossed eyed
>>>as they say they have never heard about it. I think that is what makes
>>>it hard. Many of us can sit and name 1-2 people in our lives or
>>>enviroment that have had a heart attacks or even cancer. Then of course
>>>I got to thinking about all those nifty little things I do when in pain
>>>to act and appear normal. I'm like many others who put on that strong
>>>lady act if not so much for myself but those around me b/c I do not want
>>>to be that complainer or party pooper which can make others avoid you
>>>over.
>>>I can call my mother whom I love dearly and say this or that is hurting
>>>me so bad to have this shocked responce and more so if I say well it's
>>>been going on for so long. She's shocked b/c I fail to complain about
>>>it outside of to my husband.
>>>I've long thought that men need their own board to go complain on and
>>>perhaps share stories so they can understand this disease better from
>>>that male point of view. I could move a mule quicker then to get my
>>>husband interested in that though.
>>>I think men deal with pain worse then we do and I was amused how my
>>>husband reacted to a kidney stone as if he was on his death bed. Do not
>>>get me wrong here I felt horrible for him I know that pain is horrible
>>>but I thought hmmm could you live like that day in and day out and still
>>>function, have doctors deny you and worse take meds that caused more
>>>stones instead of helping? My husband is the kind who gets a cold and is
>>>in denial he has one until it's so so bad then it's like tending to a
>>>little boy. Ok so I've used those moment to my advantage to gain
>>>compasion from it. He still can not wrap his mind around there being no
>>>easy out no easy treatment and quickly learned how his comment just have
>>>my uterus out was not truely a fix all for this. This past month I was
>>>in shock when he wanted to know if sex would help my pain? I about blew
>>>a gasket. I knew he meant well but I sure did not expect that one.
>>>I'm not so sure what awareness is needed b/c obviously it's remained
>>>that closet disease for so many. I was thinking about growing up when
>>>did you first learn of cancer and from where as well as other diseases.
>>>Was it b/c some actor/ actress got on the hype over their battle with
>>>it? Many it's just a family member who went through it while still
>>>others learn through the media outlets. How much I wonder if some well
>>>known actress was inflicted and went very public would there be the
>>>awareness and then support systems gained for us through it. The Nanny
>>>get's breast cancer,Letterman had a bi pass, Mrs. Osborn gets colon
>>>cancer,ect. it's out there for all of that but not for Edno.Heck even
>>>depression has made it's face in the celebrity world. What actress has
>>>Endo anyone know of any???? I've not seen a movie on Edno either which
>>>is another wonderful way of getting the word out.I've seen dozen of
>>>cancer related movies leukemia " a walk to remember" with Mandy Moore,
>>>Aids got Tom Hanks in "Philidephia" There might be one but I'm not
>>>aware. I also wonder if since the fact is they can afford the very best
>>>medical treatments if that's the reason they might not be aware of so
>>>many going from one uninformed uneducated or with little expereince doc
>>>to the next. I wonder as well in comparison do those celebrity related
>>>disease recieve the bigger bucks b/c one it's a celebrity fighting for
>>>the cure and more capablitlity is there for that fund raising. Just my
>>>thoughts on the whole support concern.
>>>Hugs to All
>>>Suzanne
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