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Re: support...To Tammy
From: Alyson (anonymous@obgyn.net)
Thu Sep 8 14:28:43 2005
I know sweetie, just didn't want you to be offended by my outburst! I
think we all have something to bring to the table, I learn something new
here every day.
Thanks!
Alyson
At Thu, 8 Sep 2005, Tammy wrote:
>
>Sorry hon, I wasn't refering to you with the head biteing off comment. I
>agree on the info part...most of the girls in here have way more info
>then I do...
>At Thu, 8 Sep 2005, Alyson wrote:
>>
>>Tammy,
>>I am totally not here to bite anyone's head off. I guess I was trying
>>to defend Suzanne's honor. Some people have more info than others and I
>>am all about sharing it...nicely. :-)
>>Alyson
>>
>>At Thu, 8 Sep 2005, Tammy wrote:
>>>
>>>I agree Alyson,
>>>
>>>I live way up here in cold Canada(ok so it's not that bad (He He)) and
>>>here....noda. The only reason I had heard about endo before I was
>>>diagnosed with it is because one on my Youth leaders and her Husband
>>>struggled through it. She had stage 4 and ended up having to have a
>>>total Hysto after the birth of her second son because it had messed up
>>>her insides so badly. Then about a year after her Hysto the endo came
>>>back. She has had to many surgerys now. THAT is the only reason I knew
>>>vaguely about this. Then I was diagnosed withit...after 2 years of
>>>fighting with my GP telling her there was something seriously wrong with
>>>my insides.
>>>
>>>There is vertually no public awareness out there....I didn't even know
>>>about the EA or the other one untill I joined this Forum about 2 months
>>>ago. I would tell people pestering me for money for Breast cancer
>>>research or AIDS research that until that was happening for my
>>>desease....they wern't getting any money from me....
>>>
>>>I know, I know selfish right? but I am so upset about this whole no one
>>>knowing or understanding what it really is about that I can't bring
>>>myself to help others that have different problems.
>>>
>>>You guy's have inspired me to concider a
>>
>> few different options....What
>>>if with the help of the 2 established orgs we started chapters in our
>>>own cities? starting first with advertising in the obgyn offices and
>>>promoting awareness in our own cities?? Just an Idea please don't bite
>>>my head off....
>>>At Thu, 8 Sep 2005, Alyson wrote:
>>>>
>>>>Oh my god! Must you be so antagonistic?? Everything is not litteral,
>>>>there's no need to attack someone posing a general question or those
>>>>expressing their feelings. I've stayed out of this throughout the past
>>>>week because I enjoy being able to utilize this board, but good god
>>>>already! So you know more than some of us!! Can you share that
>>>>information nicely? Its really sad that some people are afraid to post
>>>>now for fear of someone practically telling them they are stupid. If
>>>>you want to share your info we are all here to listen, but not to be
>>>>berated for not already having it.
>>>>Enough!
>>>>Alyson
>>>>
>>>>At Thu, 8 Sep 2005, anonymous wrote:
>>>>>
>>>>>>>There seem to be endo organizations,
>>>>>>which is wonderful, but no one other then us girls and some men know
>>>>>>about them.>>
>>>>>
>>>>>How do you know that? Did you interview everyone in the world? Each
>>>>>organization seems to have 20,000 or so direct members, and work with
>>>>>thousands of others around the world, so SOMEONE must know about them.
>>>>>And they are accomplishing great things everyday.
>>>>>
>>>>>>> It sure would be nice
>>>>>>to know if there is any actresses with this diesease. <<
>>>>>
>>>>>At least one of the organizations maintains a list based on their own
>>>>>personal knowledge as well as public record, and publishes it all the
>>>>>time on their discussion group for awareness purposes. The list
>>>>>includes Pamela Anderson and Senator Hillary Clinton, along with many,
>>>>>many others.
>>>>>
>>>>>The core group here is not the be all, end all of the universe, though
>>>>>it appears a couple of you think it is. Information IS out there - you
>>>>>have to seek it out.
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![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)