Re: support...TO TAMMY
From: Alyson (anonymous@obgyn.net)
Thu Sep 8 13:56:10 2005
Tammy,
I am totally not here to bite anyone's head off. I guess I was trying
to defend Suzanne's honor. Some people have more info than others and I
am all about sharing it...nicely. :-)
Alyson
At Thu, 8 Sep 2005, Tammy wrote:
>
>I agree Alyson,
>
>I live way up here in cold Canada(ok so it's not that bad (He He)) and
>here....noda. The only reason I had heard about endo before I was
>diagnosed with it is because one on my Youth leaders and her Husband
>struggled through it. She had stage 4 and ended up having to have a
>total Hysto after the birth of her second son because it had messed up
>her insides so badly. Then about a year after her Hysto the endo came
>back. She has had to many surgerys now. THAT is the only reason I knew
>vaguely about this. Then I was diagnosed withit...after 2 years of
>fighting with my GP telling her there was something seriously wrong with
>my insides.
>
>There is vertually no public awareness out there....I didn't even know
>about the EA or the other one untill I joined this Forum about 2 months
>ago. I would tell people pestering me for money for Breast cancer
>research or AIDS research that until that was happening for my
>desease....they wern't getting any money from me....
>
>I know, I know selfish right? but I am so upset about this whole no one
>knowing or understanding what it really is about that I can't bring
>myself to help others that have different problems.
>
>You guy's have inspired me to concider a
few different options....What
>if with the help of the 2 established orgs we started chapters in our
>own cities? starting first with advertising in the obgyn offices and
>promoting awareness in our own cities?? Just an Idea please don't bite
>my head off....
>At Thu, 8 Sep 2005, Alyson wrote:
>>
>>Oh my god! Must you be so antagonistic?? Everything is not litteral,
>>there's no need to attack someone posing a general question or those
>>expressing their feelings. I've stayed out of this throughout the past
>>week because I enjoy being able to utilize this board, but good god
>>already! So you know more than some of us!! Can you share that
>>information nicely? Its really sad that some people are afraid to post
>>now for fear of someone practically telling them they are stupid. If
>>you want to share your info we are all here to listen, but not to be
>>berated for not already having it.
>>Enough!
>>Alyson
>>
>>At Thu, 8 Sep 2005, anonymous wrote:
>>>
>>>>>There seem to be endo organizations,
>>>>which is wonderful, but no one other then us girls and some men know
>>>>about them.>>
>>>
>>>How do you know that? Did you interview everyone in the world? Each
>>>organization seems to have 20,000 or so direct members, and work with
>>>thousands of others around the world, so SOMEONE must know about them.
>>>And they are accomplishing great things everyday.
>>>
>>>>> It sure would be nice
>>>>to know if there is any actresses with this diesease. <<
>>>
>>>At least one of the organizations maintains a list based on their own
>>>personal knowledge as well as public record, and publishes it all the
>>>time on their discussion group for awareness purposes. The list
>>>includes Pamela Anderson and Senator Hillary Clinton, along with many,
>>>many others.
>>>
>>>The core group here is not the be all, end all of the universe, though
>>>it appears a couple of you think it is. Information IS out there - you
>>>have to seek it out.
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)