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Re: A never-ending storyFrom: Agata (anonymous@obgyn.net)Wed Sep 7 14:32:19 2005
Hi Tammy, I am glad that you brought up the subject of what to do and eat when you are in pain.I am due to start my hormonal treatment next month and I was wondering what else I can do to deal with the side effects. We all know that healthy diet is important, we know that it is good to cut down on coffee. I was also told to include in my diet lots of fish, to take some vitamin E( of course after talking to your doc because the dosage will change over the months). I also heard that citrus fruit shoudnīt be eaten as it supports the hormons which you want to flush out of your system. Does anyone know any other tricks which will help to fight this horrible, horrible, horrible! desease? Have a good day all of you. Agata At Wed, 7 Sep 2005, Tammy wrote: > >Hi Robyn, > >First off, I wish I could give you a real hug.....I know how frustrating >this is especially with little kids. The Syneral should kick in soon if >it doesn't go back to your Dr. They can change to dose(if you read the >bottle the actual recomened dose is 2 squirts to alternating nostrils >morning and night. I am so thankful that I was on this...now. I have >been relativly pain free(ok so I had my first period since Nov of last >year and only needed to eat superstrenght motrine-not the real stuff). I >guess the Syneral is supposed to become fully effective within the first >month. Call your Doc back if it doesn't because like I said you may >need the dosage changed. Please let me know if you have any other >questions, from what I have seen in here very few other people have >heard of or taken Syneral. > >I wish I could tell you that there was a light at the end of the tunnel >but I don't even know....I am trying for another baby and this will >probably be my last I only have one ovary left thanks to this desease >and more scar tissue then you could shake a fist at. One thing thanks >to this FORUM that I have learned is to talk to my family(I have >suffered with this for 10+ years and I kept silent about how I was >feeling and what it was doing to me both physicaly and mentaly). Most >of the people that are in here are fantastic...They have great ideas and >have way more knowledge on this horrid desease then I do(I just started >researching and learning about this back in July) > >I also do Palatese(spelling???). I find that the non heavy physicaly >taxing work out is easier on me then a good cardio. I also find that it >really works my tummy muscles and that seems to help with the pain as >well. But on the day's that you are in pain, baby yourself....eat the >comfort foods(Mcdonalds,mash potatos, chocolate,yummmm), take the extra >long warm bubble bath, and sleep. I am trying to do some research on >more herbal drug remadies as well(I am sick of daily pain meds) I have >been told by my regular Dr to take Cod Liver Oil and fish oil as they >really help with lubercation and easing of the pain. I am looking into >other options as well because like you I am really tired of all the >drugs..... >Hope this helps let me know how your doing >At Wed, 7 Sep 2005, Robyn wrote: >> >>I am new to this site, I just found it while typing in the word >>endometriosis for the fiftieth time, trying to find some new and >>fantastic information that will stop this hell. I didn't find any >>magic, but this forum is actually pretty comforting. It's nice to know >>there are people out there who know what I am going through. I had a >>lap three weeks ago, and have had nothing but questions ever since. My >>doctor called me in to the office, sat me down for a grand total of >>three minutes, stating that I needed to go on Synarel, listed the side >>effects, and told me to come back in six months. About a week and a >>half after my procedure I started bleeding like I never have before, >>with pain that doubled me over, so I called his office. Seven hours >>later he called me back, stating that the bleeding and pain were normal, >>and eventually the Synarel would take care of both. Eventually?? Every >>day I wake up thinking to myself "Okay....the pain will be better today. >>And every day I sit at my desk trying to talk myself out of taking yet >>another pain pill. Last night, while watching TV with my daughter, I >>said something kinda dumb, and she said, "You took those pills that make >>you stoned again, didn't you, Mom?" It broke my heart. I don't want to >>be a "junkie mom". Since my lap, the pain has been worse than ever >>before. I used to have 2 really bad weeks per month. (The week before, >>and the week of my period). Now it seems that I am destined to be in >>pain 24 hours a day, seven days a week. I am gaining weight like there >>is no tomorrow, because I can't be bothered to fight through the pain >>long enough to exercise, and then I get bummed out and grab a nice big >>bag of "comfort food". I realize that lack of exercise and stress, and >>probably even depression are contributing factors to the amount of pain >>I am in, but I find myself wondering how in the hell I am supposed to do >>anything about it. If the pain makes me feel depressed, and depression >>makes me feel lazy and want comfort food, which makes me fat, and being >>fat makes me depressed, then how do I get myself out of this?? It feels >>like a viscious circle. Anyone out there have any advice on how to make >>myself feel better? How to motivate myself through the pain and off the >>couch? Is there a light at the end of this freakin' tunnel? Holy >>cow....usually I hate feeling sorry for myself, but I think I just did a >>pretty good impression of someone who feels very sorry for herself. >>Sorry if I sound whiny.....I just needed to vent. thanks
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