ENDO Messages for September, 2005: Re: A never-ending story

Re: A never-ending story

From: Lori (anonymous@obgyn.net)
Wed Sep 7 14:04:11 2005

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Robyn, Sorry that you have to join us to this forum, but we are all glad you are here. This forum gives a sense of comfort. We all have an understanding that we can't cure this beast (yet) but we at least find comfort in eachother. You are right this is a vicious circle and it is never ending. Endo is no fun and unfortunately you sound like you are in a doctor rut like the majority of us. They just don't spend time with us nor talk to us about this diesease. They just want to give us a pill and have us wait a miserable amount of time before we come back. Unfortunately, I believe gaining weight is a side effect of many treatments. I never used to be over weight, I went on Lupron and it got out of control. I was feeling a doing the things that you described in your post. I went off the medication and it helped me to get a normal appetite, but unfortunately 5 years later I am still battling with my weight. Now I am not 100's of pounds over weight, but I am over weight and I just can't stop it. Even some days when I get to feeling sorry for myself I go for those comfort foods. Exercise is hard and I can't get myself motivated, but I guess I just do it for my kids. My little girl loves walks and I try to walk as much as possible. I am so tired that I don't do as much as I should. I am sorry about what your daughter said. It is frustrating and hurts, but do try to remember that you are not choosing this, it has chose you and there isn't anything you can do about that. How old is she? Can you try to explain how this disease works or is she too young to understand? A lot of people don't give the support because it is a disease that is shrugged off and isn't shown too much publicity. I wish it was more public. I know it is hard, but maybe instead of reaching for the comfort foods, pull out a bag of carrot chips, almonds, or fruit. I know, easier said then done, but it is worth a shot. Don't feel bad about venting and you didn't sound whiny. we are all hear to help and listen and you just vent to your hearts content. Sometimes that just feels good! :) Take care! Hugs~` Lori D.

At Wed, 7 Sep 2005, Robyn wrote: >
>I am new to this site, I just found it while typing in the word
>endometriosis for the fiftieth time, trying to find some new and
>fantastic information that will stop this hell. I didn't find any
>magic, but this forum is actually pretty comforting. It's nice to know
>there are people out there who know what I am going through. I had a
>lap three weeks ago, and have had nothing but questions ever since. My
>doctor called me in to the office, sat me down for a grand total of
>three minutes, stating that I needed to go on Synarel, listed the side
>effects, and told me to come back in six months. About a week and a
>half after my procedure I started bleeding like I never have before,
>with pain that doubled me over, so I called his office. Seven hours
>later he called me back, stating that the bleeding and pain were normal,
>and eventually the Synarel would take care of both. Eventually?? Every
>day I wake up thinking to myself "Okay....the pain will be better today.
>And every day I sit at my desk trying to talk myself out of taking yet
>another pain pill. Last night, while watching TV with my daughter, I
>said something kinda dumb, and she said, "You took those pills that make
>you stoned again, didn't you, Mom?" It broke my heart. I don't want to
>be a "junkie mom". Since my lap, the pain has been worse than ever
>before. I used to have 2 really bad weeks per month. (The week before,
>and the week of my period). Now it seems that I am destined to be in
>pain 24 hours a day, seven days a week. I am gaining weight like there
>is no tomorrow, because I can't be bothered to fight through the pain
>long enough to exercise, and then I get bummed out and grab a nice big
>bag of "comfort food". I realize that lack of exercise and stress, and
>probably even depression are contributing factors to the amount of pain
>I am in, but I find myself wondering how in the hell I am supposed to do
>anything about it. If the pain makes me feel depressed, and depression
>makes me feel lazy and want comfort food, which makes me fat, and being
>fat makes me depressed, then how do I get myself out of this?? It feels
>like a viscious circle. Anyone out there have any advice on how to make
>myself feel better? How to motivate myself through the pain and off the
>couch? Is there a light at the end of this freakin' tunnel? Holy
>cow....usually I hate feeling sorry for myself, but I think I just did a
>pretty good impression of someone who feels very sorry for herself.
>Sorry if I sound whiny.....I just needed to vent. thanks

Next message: Robyn: "Re: A never-ending story"
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In reply to: Robyn: "A never-ending story"
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