Re: Another useless doctors appointment
From: Kara (anonymous@obgyn.net)
Mon Sep 5 21:34:53 2005
Crystal,
You go girl! I think there are very few doctors that actually understand
us, and if we're lucky enough - we find them. I did, and I thank God
for him!
As far as Lupron is a shot, sometimes once every 3 months, sometimes
once every month (like I am on) it works to manage endometriosis by
lowering hormone levels. It is this lowering of hormone levels that
decreases endometrial growths and provides symptom relief. It doesn't
always work for every woman. I've been lucky enough for it to work on
me. But others in here have had no luck. Some have had some pretty
severe side-effects from it. I had some hot-flashes but I was put on
add-back therapy. Since treatment with Lupron lowers hormone levels,
during treatment with Lupron some may experience side effects such as
bone density loss and hot flashes. From day one of therapy, your doctor
can help decrease these side effects by prescribing Lupron with add-back
therapy.
Add-back therapy is a pill (I'm on Aygestin) that adds back low levels
of a hormone without interfering with the effectiveness of Lupron. It's
done wonders for me with the hot-flashes. I also take a multi-vitamin
along with a calcium tablet too (due to the fact that Lupron has been
known to assist in bone density loss.
I hope you have pain free days!!!
>>>HUGS<<<<
--
Kara
At Mon, 5 Sep 2005, Crystal wrote:
>
>Hi girls,
>Thanks everyone.
>It helps to know that I'm not alone...But it also makes me sad to know
>that there are so many of us out there that doctor's care nothing about.
>It makes me sick. Who do they think they are anyway, telling us there's
>no hope... if it was one of there loved ones I bet they care
>then.........
>Does anyone know a good endo specialists any where in Windsor, or
>London, Ontario, Canada?????????? I need to find the next dr.
>
>What is the Lupron treatment????? I've only heard or it from from you
>ladies????
>
>Thanks hope everyone had a pain free day!
>
>Crystal
>
>At Sun, 4 Sep 2005, Laura wrote:
>>
>>Hey, girls,
>>I am with you completely. I am 22 and last week started the Lupron
>>treatment...so far so good. I was scared that I wouldn't be given any
>>other option than a hysterectomy, but from talking to my doctor and also
>>listening to many in this group, I am so thankful that I looked into
>>other options. What was a relief for me was that my insurance made the
>>Lupron a posibility; it is an expensive drug but all I cover are my
>>co-pays and <hopefully> it works. Any doctor that says that you only
>>have one option or that they know just as much as anyone else shouldn't
>>be your only medical option. What area do you live in? From reading
>>others' posts, I've noticed that a lot of people are able to help find
>>good gynos, either through their own or through friends and friends of
>>friends. I'm confused though on the STD thing; I've never even been
>>asked about that?? I'm not sure understand...what do they tell you the
>>link between STDs and endometriosis is?
>>Hang in there and remember that you're not alone...we're all here with
>>ya ;)
>> Laura
>>
>>At Sun, 4 Sep 2005, anonymous@obgyn.net wrote:
>>>
>>>Hey Jane, I have been through the same thing...I am 21 and I have been
>>>through like 8 gynos now I guess it is and 5 family drs. It seems never
>>>ending. I have had to proove myself w/ almost all of them. Becuase I
>>>am young they assume its an STD ALWAYS! It makes me seriously depressed
>>>... They do all of the tests an they are all negative... and once we
>>>are past that.. for me it has been one dr that I see now that wants me
>>>to take Lupron and last appt he said "Well you can do the surgery if you
>>>want but you do realize you can just die in the surgey" so you may as
>>>well take the lupron is what he told me. I was soo angry....
>>>
>>>Soo I am Looking yet again for a new gyno... I liked that one except he
>>>did not want to give me meds for pain and he wanted me to do the lupron
>>>and I was just not comfy with it...............
>>>
>>>So I understand where you are coming from. I think we all go through
>>>it. I am so thankful to have found this site to know that others are
>>>going through what I am. Though it does not cure me it helps to know I
>>>am not alone.. I know at times I feel all alone.. like my life is on
>>>hold because of the pain i am constantly in...... Or its passing me by
>>>I should say.
>>>
>>>Take care *hugs*
>>>Donna
>>>
>>>At Thu, 1 Sep 2005, JENN wrote:
>>>>
>>>>Jane I hear ya, my doctor has suggested Lupron (i am only 23)
>>>>Has your doctor suggested that or is his only alternative a hyst?
>>>>Any doc with that sort of this(hyst) is the only solution additude
>>>>should be SHOT. lol
>>>>Girl just keep looking get a second opion he can't stop you tell him you
>>>>are going to get a second opion becouse you feel that his is wrong.
>>>>We have all been there in fact most of us are going through it, there is
>>>>no cure as well as no diagnosis. i was just diagnosed with stage 2
>>>>today in fact and i can feel with you.
>>>>But chin up look out htere you'll find a dr. Try posting a message on
>>>>where you are and see if anyone else lives in that area and are seeing a
>>>>different GOOD doctor. just ask if ther are any good endo specialists
>>>>or obgyn in the >>>>>>> area, worked for me and I am in Canada.
>>>>~hugs and hope you get your answers.
>>>>Jenn
>>>>
>>>>At Thu, 1 Sep 2005, Crystal wrote:
>>>>>
>>>>>Doctor's appt. no# 10,000,000 .... it seemed, told once again that
>>>>>there is no cure and no help available, "A hysterectomy the only way to
>>>>>go." I asked for a reference to a specialist.. or to another OBGYN but
>>>>>I was told there wasn't anyone he could refer me to, no one that knew
>>>>>anything more about my problems than he did. Should a 24 y/o have to
>>>>>give up her ability to bare children because of Endo?! I REFUSE to buy
>>>>>that.. anyone out there know who/where or wtf i can do?
>>>>>Any info much appreciated :)
>>>>>
>>>>>--
>>>>>SunshineJane81@hotmail.com
>>>>>
>>>>--
>>>>Thankyou bella - JENN
>>>>
>--
>SunshineJane81@hotmail.com
>
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