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Re: Another useless doctors appointment
From: Amanda (anonymous@obgyn.net)
Mon Sep 5 18:16:01 2005
Your story sounds all too familiar. My first gyno in the new town I
moved to said the same thing about dieing during surgery. I saw her 7
times complaining about pelvic pain, she initially told me it was in my
head, and then said "how would I explain to your family if you died
during surgery that I operated on a perfectly healthy 25 year old."
All I can say is don't give up, eventually you will find someone that
will work with you and help you. I am appalled that the medical
profession has treated so many of us so poorly. I cry every day b/c I
am in constant pain, I also have interstitial cystitis, and I just don't
know where else to turn. It's just not right. I guess all we can do is
keep our heads up and keep looking for help until we get it, and I know
it's extremely frustrating at times, and it basically has ruined my
life. I hope there are better days ahead, take care and god
bless.....Amanda
At Sun, 4 Sep 2005, G wrote:
>
>Hey ladies,
>
>Oh man i know what u are going thru. i am only 26, i have beeen blessed
>with a three year old son. i did the lap thing in march and now the
>pain is back. i just started lurpon last week. i like u don't want a
>hysto...but don't want another lap either. my doctor says that is the
>next step is the lurpon doesn't work. i'm not ready for such a drastic
>change. i agree about the feeling alone. its so nice to know i am not
>crazy. well best of luck to ya!!
>
>--
>G
>
>At Sun, 4 Sep 2005, anonymous@obgyn.net wrote:
>>
>>Hey Jane, I have been through the same thing...I am 21 and I have been
>>through like 8 gynos now I guess it is and 5 family drs. It seems never
>>ending. I have had to proove myself w/ almost all of them. Becuase I
>>am young they assume its an STD ALWAYS! It makes me seriously depressed
>>... They do all of the tests an they are all negative... and once we
>>are past that.. for me it has been one dr that I see now that wants me
>>to take Lupron and last appt he said "Well you can do the surgery if you
>>want but you do realize you can just die in the surgey" so you may as
>>well take the lupron is what he told me. I was soo angry....
>>
>>Soo I am Looking yet again for a new gyno... I liked that one except he
>>did not want to give me meds for pain and he wanted me to do the lupron
>>and I was just not comfy with it...............
>>
>>So I understand where you are coming from. I think we all go through
>>it. I am so thankful to have found this site to know that others are
>>going through what I am. Though it does not cure me it helps to know I
>>am not alone.. I know at times I feel all alone.. like my life is on
>>hold because of the pain i am constantly in...... Or its passing me by
>>I should say.
>>
>>Take care *hugs*
>>Donna
>>
>>At Thu, 1 Sep 2005, JENN wrote:
>>>
>>>Jane I hear ya, my doctor has suggested Lupron (i am only 23)
>>>Has your doctor suggested that or is his only alternative a hyst?
>>>Any doc with that sort of this(hyst) is the only solution additude
>>>should be SHOT. lol
>>>Girl just keep looking get a second opion he can't stop you tell him you
>>>are going to get a second opion becouse you feel that his is wrong.
>>>We have all been there in fact most of us are going through it, there is
>>>no cure as well as no diagnosis. i was just diagnosed with stage 2
>>>today in fact and i can feel with you.
>>>But chin up look out htere you'll find a dr. Try posting a message on
>>>where you are and see if anyone else lives in that area and are seeing a
>>>different GOOD doctor. just ask if ther are any good endo specialists
>>>or obgyn in the >>>>>>> area, worked for me and I am in Canada.
>>>~hugs and hope you get your answers.
>>>Jenn
>>>
>>>At Thu, 1 Sep 2005, Crystal wrote:
>>>>
>>>>Doctor's appt. no# 10,000,000 .... it seemed, told once again that
>>>>there is no cure and no help available, "A hysterectomy the only way to
>>>>go." I asked for a reference to a specialist.. or to another OBGYN but
>>>>I was told there wasn't anyone he could refer me to, no one that knew
>>>>anything more about my problems than he did. Should a 24 y/o have to
>>>>give up her ability to bare children because of Endo?! I REFUSE to buy
>>>>that.. anyone out there know who/where or wtf i can do?
>>>>Any info much appreciated :)
>>>>
>>>>--
>>>>SunshineJane81@hotmail.com
>>>>
>>>--
>>>Thankyou bella - JENN
>>>
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