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Re: new diagnosis , confused

From: Alyson (anonymous@obgyn.net)
Fri Sep 2 12:24:02 2005


Vivian, One thing that has been stressed to me throughout my experience is that your level of pain does not necessarily reflect your level of disease. My doctors have told me, and I have read elsewhere, that some women can live almost their entire lives with extreme cases of endo and never know it- and some women may have relatively little disease and be in extreme chronic pain. I am sure your doctor may want to suggest some type of surgery to release your organs. Just do plenty of research and be ready with questions. There are alot of medications- Lupron, Danazol, Progesterone...many things to look into to help keep the endo at bay. I am scheduled for my second lap in a month. The doc plans to remove the endo and any possible adhesions and follow up immediately with progesterone to try to keep the endo from growing for awhile. My disease is not as advanced as yours (last lap I had no adhesions and the endo was concentrated to a specific area), but I'm one of those chronic pain people. Unfortunately this disease has no rhyme or reason and follows no rules. Best of luck to you. Alyson

At Thu, 1 Sep 2005, vivian wrote: >
>This week I have been told I have endo after having a lapaoscapy to
>remove my ovaries due to other problems,which they were unable to do
>because of this . I was totaly unaware and shocked to discover this as
>I have no serious symptoms as discribed on various sites. Apparently
>every thing is stuck down in my pelvis . which was why they were unable
>to do this via a lapaoscapy. I have the occasional painfull period
>which I take paracetomol ,end of problem, periods have been heavier
>since having children which can be normal but not excecively. I go back
>to see my consultant in week or so time to discuss next move and
>treatment but would like to hear other peoples take on this who have
>been there so to speak. look forward to hearing from anyone
>
>--
>vivian
>




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