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excision info/was tailbone endo discussion
From: Kate (anonymous@obgyn.net)
Wed Aug 31 19:59:15 2005
Amanda,
Excision is a technique that some doctors use to remove the endo, as
opposed to laser vaporization (burning it off). There are only a few
specialists in the United States who do this, from what I understand.
One of the most famous is Dr. Redwine in Oregon. Here is his website
-- http://www.endometriosistreatment.org/html/reprints1.html -- there is
a lot of information on it, if you dig around. WebMD has a good
interview with him that has a lot of good questions/answers too --
http://my.webmd.com/content/article/64/72209.htm?lastselectedguid={5FE84E90-BC77-4056-A91C-9531713CA348}
It might be good to read up on it before you go back to see your doctor,
so you can go in there and ask some pointed questions. I was pretty
much like you after my 1st lap, and didn't know much about it. Not sure
where you live, but there might be a specialist close to you, if you
look into it, or ask your doctor if she might know. Dr. Albee's Center
for Endo in Atlanta also has a good informative website --
http://www.centerforendo.com/ I'm like you, I work at a desk all day,
and the pain really gets bad. I went out and bought one of those
inflatable rings from the drugstore, and sit on that when it is really
bad. It does help some, so you might try that.
Feel free to email me if you want to talk about it!
-Kate
At Wed, 31 Aug 2005, Amanda wrote:
>
>Hi Kate,
>I haven't been able to talk to my doc yet, that was just what she told
>my family. That because of the positioning of it she could not get it.
>Now, I don't know if that means I have to live with it, or if she means
>I need to see a different doctor for it???? I'm not quite sure of the
>terms you are using cause I am new to this endo stuff, so I don't know
>what excision is, but I do know that she burned out the endo she could
>get. The only endo she didn't get is that in the tailbone area.
>Something has to be done about it because I have a desk job that
>requires me sitting all day long, and the pain is just almost unbearable
>for like 10 days around my period. Actually, I was told over a year ago
>that it was an internal hemmoroid, but my doc told my family that it was
>definitely the endo cause the "pain in the butt" LOL, not a hemmoroid.
>
>I will see my doctor on sept. 15th, and hopefully I will have more
>answers then. If you have any more information about this please please
>let me know because something has to be done about it!! Take care,
>Amanda
>At Wed, 31 Aug 2005, Kate wrote:
>>
>>Amanda,
>>Like you, I've had the tailbone pain, and it's been really bad lately.
>>It sounds identical to yours in how it acts too. I also have hip/lower
>>back pain.
>>I am considering having a second lap soon for endo, and am trying to
>>decide on a doctor.
>>You said that your doctor said that she could't remove the endo in the
>>tailbone area. So, what is she proposing that you do? Did she do
>>excision removal of the other endo you had, or what was her technique? I
>>am considering going to a specialist that does excision, but there
>>aren't any close to where I live, so I'd have to go out of state, and it
>>would be a lot more expensive. I'm wondering... if the average ob/gyn
>>can't remove endo in that area (behind the uterus and tailbone), maybe I
>>should.
>>Any info you have on this would be greatly appreciated!!!
>>-Kate
>>
>>At Wed, 31 Aug 2005, Amanda wrote:
>>>
>>>Hi there, I also have severe butt pain. It is constant, but it gets
>>>excruciating around the time of my period and is severe for about 10
>>>days. I had my first lap on friday and my doc said it was definitely
>>>endo causing me that pain. Because it is behind the uterus and almost
>>>underneath the tailbone, she could not remove it. It seems to travel
>>>down the back of my legs and also into the hip area. I know what you
>>>are feeling, and it seems that it is probably the endo. I wish you luck
>>>in getting it taken care of so you get some type of relief:) Amanda
>>>
>>>At Tue, 30 Aug 2005, Mia wrote:
>>>>
>>>>At Mon, 1 Aug 2005, Tracey wrote:
>>>>>
>>>>> Hi again,...me Tracey,
>>>>> Glad to have found a few woman to speak to about this Endo hell.
>>>>>For a long time I've had pain around my SI joint and into my butt and
>>>>>hip on one side.(Left)
>>>>>I have back problems too so I wondered if this pain that bothers me
>>>>>quite often is from my back,..or from Endo?
>>>>> Not sure if I need a chiropractor or another Lap.
>>>>> Is this a common thing with Endo??
>>>>> Anyone?
>>>>>
>>>>>Take care ,and Thanks for replying~
>>>>> Tracey
>>>>
>>>>--
>>>>Just asked my ob/gyn same ? today. He said it was my tailbone. I too have severe back problems under care of chiropracter for subluxation in c 1 and 2 I have had low back pain for years. I too am conveinced that the endo is about 35% of my low back and hip pain. But no proof. I am 43 and considering complete hysto but very scared about going under anestesia. My mother in law died post-surgery 3 years ago from blood clot leaving leg and traveling to lungs. Never tried any drugs (lupo) etc.. but Doc says lets just take it all out.
>>>>
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