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Re: Please help me

From: Claire (anonymous@obgyn.net)
Wed Aug 31 16:47:22 2005


Hi Tara

I am very new to endo with confirmed diagnosis after a lap 5 days ago. Prior to that I had relatively normal periods but started to get very achey in the legs and lower back, and some stabbing pains and heaviness on the lower right abdominal area. I also had bouts of diarreha (spelling) and constipation. For the last 4 months I've not felt 100% but was unsure why. When my specialist suggested endo I didn't really believe her because I always thought it affected your fertility. A week before my lap I found this website and I was amazed to see and learn that it was indeed probably endo that I actually had. From what I've learnt (and I am very new to endo - or knowing that I had it) endo can present itself in so many different ways and it doesn't necessarily mean heavy periods and excruciating pain. I had mild to moderate discomfort in the pelvic region/lower back/hip and down the legs which increased to almost every day that I felt it. Some just get the symptoms around their cycles. When my lap was done on Saturday the diagnosis was severe endometriosis with both left and right ovaries stuck to the pelvic sidewall (right was worse) I was shocked - my obgyn said - you are lucky you have your babies...(I have two young children - I am 35) You are doing the right thing by seeing your doctor, you will get a diagnosis and if you have medical insurance, then get a lap done. Its the only sure fire way of knowing. All my ultrasound scans showed up a perfect pelvis...... I am relieved that I had the lap done, I am still in discomfort from the lap 5 days on, but I know they also did extensive work inside me to remove the endo and to fix me up - so I expect to be not right for another week or so yet, but I am glad there was an outcome, there was a reason for my discomfort and at least I know what I am faced with. Not knowing was agonising for me. I thought I had Cancer. Now I just have to heal and then see my obgyn again and find a way of managing the endo and try to prevent it from returning. You will be fine - I wish you all the best and I hope you have found a bit of comfort from my post - even if just a little. Claire

t Wed, 31 Aug 2005, Tara wrote: >
>I have never posted on here before although I have been reading a few of
>your messages for about a month now. I am so sorry to all of you that
>are in so much pain. I am wondering if anyone can help figure out what
>I may have wrong with me! Please! My family doc. refered me to a ob/gyn
>and I will be seeing him in about a week. I want to know as much as I
>can before I will see him. Bottom line is that I want a RIGHT
>diagnosis. About 2 mo. ago at ovulation time I got severe pelvic
>pressure that lasted for about 2 days. I have brown discharge for a 2-3
>days before and after menstruating. The day b-4 my period I have really
>achy legs. The next day I was making lunch and couldn't stand the pain
>(pressure), I had to sit right there. I started menstruating shortly
>after the pressure came. It helps somewhat to sit but if I lay down the
>pain goes away. The pressure seems to get worse throughout the day. My
>lower back hurts during these times and I am always so tired. I don't
>know if the tiredness has anything to do with it. My periods seem to be
>normal. A couple of times I got sharp pains in my lower right abdomen.
>I just started to leak some urine. The pain seems to last a few more
>days now. I think it just keeps getting worse. My family doc. thought
>maybe my uterus was dropping when I called so he said to come in. While
>he was doing the pelvic exam he put pressure straight back and to the
>right and left and it hurt extremely bad. Maybe like a tender feeling.
>He ruled out the uterus dropping and that's when he refered me to
>someone else. I'm just scared to go see a doc. that might not care.
>Also does anyone have any advice for my doc. visit, questions I may ask
>him or comments? I don't think I left anything out. I would truly
>appreciate it if anyone has ANYTHING for me, please. Thank you so much
>for listening. Good luck to all of you out there and take care.
>
>--
>Tara
>






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