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Re: Day 3 of recovery - and What now? - To Sarah
From: Claire (anonymous@obgyn.net)
Wed Aug 31 03:05:51 2005
Thanks Sarah for your reply.
sounds like our endo is very similar. I actually got the report today
from the obgyn and it was on both of my ovaries causing them to stick to
the pelvic wall and also all over my ureters, pouch of douglas and deep
endometriomas into the pelvic wall - goodness - what a mess. But for
now at least its all gone. I am feeling much better today, but am just
taking it slowly, I find I can potter around so much then I feel I just
need to rest. I get a very heavy feeling in the pelvis, and the odd
throb so I guess thats my sign my body is saying - rest!!! (I find it
hard to relax, I am quite a hyper person) So I've got used to laying on
the sofa flicking mindlessly through tv channels...
I will just sit tight until I have my specialist appt in 6 weeks, but in
the meantime I am trying to make the obvious dietary changes, no sugar,
no alcohol (except Saturdays) cut down on red meat and eat lots of fresh
fruit and veg. I haven't completely cut out coffee, but I have reduced
it. Do you follow any strict dietary plan.
Thanks for your post and I hope you and everyone are not suffering too
much with pain today.
Cheers
Claire
At Tue, 30 Aug 2005, Sarah wrote:
>
>Hi Claire,
>
>Firstly i'm pleased your surgery went OK and your now at home hopefully
>recovering well...............I do hope you have someone at home with
>you nursing you back to health!! My mum was my little nurse and i don't
>know what i'd of done without her!!
>
>After my first lap i was also diagnosed with severe endo on both my
>ovaries, so much so they had both stuck to my pelvic wall and had to be
>cut free! It took me 3 weeks to feel back to "normal" so just make sure
>you make the most of the rest...............
>
>Its a tough question to answer as to what you can do now to stop your
>endo coming back, after my op my consultant told me he had lasered all
>my endo away and it shouldn't come back YET 5 months on and it has
>returned on my left ovary!! I think apart from giving you hormones to
>stop your monthly period or having a hysterectomy there really isn't any
>real quarantee that it isn't going to come back!! This is why Endo is
>such an ongoing battle and sometimes it feels never ending!! That said
>sometimes ladies have one bout of endo get it treated and it never comes
>back so you may be one of the lucky ones!!
>
>I'm sorry i couldn't be a bit more positive, lets just hope that this is
>it for you. I think the best advise i can give you is to try and stay
>positive and don't let this get you down. You know your body better
>than anybody else and if you think that your endo is back go straight to
>your doctor, don't leave it! Normally once you've had a lap the endo
>takes a while to come back (sometimes 2/3 years) so you should be pain
>free for quite some time!
>
>I hope this helps a little even though it wasn't the most positive news!
>
>Take good care
>
>--
>Sarah - London
>
>At Mon, 29 Aug 2005, Claire wrote:
>>
>>Hi everyone
>>I am now on day 3 of my recovery from my first lap. I must admit I am
>>surprised at home much I feel it has knocked me around. Still feel
>>pretty exhausted but feel pretty good with only mild discomfort from the
>>surgery, no severe pain, mild period type cramps occassionally. The gas
>>bubbles are still being a nuisance in the shoulders if I walk around too
>>much. So I am just taking it easy.
>>My surgery results were severe endometriosis on the left pelvic wall and
>>cul de sac (whatever that is) and my left ovary was starting to stick to
>>the wall, however my right ovary was stuck completley to the pelvic wall
>>which was causing alot of the pain. There were also alot of adhesions
>>on the right side which she said were part of or caused by 2 c-sections.
>>I have a follow up with my specialist in 6 weeks. But in the meantime
>>apart from taking it easy, what do I do now? As far as I know all the
>>endo has been removed? Will it come back? Although she has classed it as
>>severe endo, I had mild-moderate pains but not severe 2/4 weeks per
>>month, relatively normal periods like clockwork. How do I prevent it
>>from coming back, how do I make sure I can heal and remain healthy. I
>>feel like I need a direction, and I'm not sure I can wait 6 weeks to get
>>all the answers. Should I start the endo diet or something similar now
>>- straight away or should I just concentrate on getting well again
>>first. Many of you have been through this I know - so what do you think
>>I should do?
>>Look forward to reading your replies.
>>Happy pain free days
>>Claire
>
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