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Re: New to Site/ Endometriosis Treatment Help
From: G (anonymous@obgyn.net)
Tue Aug 30 21:04:39 2005
Lindsay,
Well i guess we are in the same boat. i have had endo for the last 2
yrs. my pain got so bad that in march they did a lap. that is when we
found out for sure that i had endo. i had a few pain free months and
now i am back to hurting again! i am with u i didn't want a
hysterectomy...i am also not sure why. i guess at age 26 i am not ready
for such a permenant change. so i wieghted my opions and i started
lupron yesterday. i am crossing my fingers that it works and the s/e
won't be to bad! i don't want to do another lap every six months or so.
i am with u on not knowing what to do. keep ur head up and best of
luck!!
G
At Tue, 30 Aug 2005, Lori wrote:
>
>Lindsay,
>sorry to hear that you have endo. It isn't fun and I am with you, it is
>so hard to make that decision. Unfortunately we can't help you decide,
>but I can tell you what my story is and maybe it'll help.
>I too was diagnosed with endo 7 years ago. They diagnosed me with stage
>IV endo. I do have 3 children, 2 on Earth and 1 in heaven. I don't
>like any of the treatment options. Maybe it is pure stuborness, but I
>don't like the side effects. My thinking is, we already have endo, we
>don't need a million other things going wrong so that we can have a
>limited time of pain free days, if even that. Luckily for some people,
>Lupron work, for me, it didn't help the pain and I had awful side
>effects. Hot flashes, leg cramps, moodiness, headaches, weight gain and
>the list goes on and on. Sorry to tell you this, I don't want to sound
>negative, but that is just my feeling on Lupron. Some other girls might
>tell you different and say it works well for them.
>A hysterectomy isn't a fun option. I do know women who have had them
>and things have gone well and then there are some that aren't as well
>either. But you are so correct, you have to be ready for one, it is a
>huge step.
>I am so sorry that I wasn't a bigger help, but I am here in case you
>ever need someone to talk to. I make a good listener.
>Hugs~
>Lori D.
>
>At Tue, 30 Aug 2005, Lindsay wrote:
>>
>>This is my first visit to this web-site, although I was diagnosed with
>>Endo about 7 years ago. I was having a tremendous amount of pain a few
>>years ago and my dr recommended I go through a 6 month series of Depo
>>Lupron, but before I had made a decision to do that, I was pregnant with
>>my third child. My baby is now 2 and for the last several months the
>>pain has steadily increased. I am 28 years old and feel like I am 90.
>>Some days the pain is so unbearable I don't know what to do. Recently,
>>I have had yet another ovarian cyst that has been monitored for the last
>>5 weeks. The dr was hoping that the pain was not the endo but the cyst.
>>Well, yesterday I was back in the dr office with excruciating pain and
>>although the cyst is still there...they are reassuring me that this pain
>>is endo and it is not going to just "go away".
>>The treatment choices given to me are: Hysterectomy, Depo Lupron, or
>>taking a chance that Laproscopy will give me a few "pain-free" months.
>>
>>I don't know what to do. I don't want to have a hysterectomy, not sure
>>why, but just doesn't feel like a good choice for me. BUT, I have heard
>>horror stories about the Lupron treatment and how horrible the side
>>effects are and that a lot of times it isn't helpful. And the LAP
>>surgery, well...is it worth having this done again???
>>
>>Someone help...just need some advice and maybe some history from those
>>who have tried some of these treatment options.
>>Thanks
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