ENDO Messages for August, 2005: Re: need advice

Re: need advice

From: Lori (anonymous@obgyn.net)
Tue Aug 30 13:42:37 2005

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Isa, I am so sorry that you have to be here with all of us, but I am glad you came. Just to let you know how this works. YOu can type a message and it available for anyone to read. Then people can click on your message, read it and then reply to it. It is a nice way to get opinions and support by many women dealing with similar problems. I hope we can help. I do have to say, I definately don't agree with doc's when they play endo off as "just a colon problem" although it contributes to that in some cases, it is not all it is. I don't think that just changing your diet will help. It helps some, but it can not be the only treatment, at least not in my eyes. It is your choice to talk further with your doc and let her know that you'd rather look into other treatment options, but please when you check them out, really be sure to look closely. They tend to have a lot of side effects. Unfortunately there is no cure, so therefore there is not great option. Many women are just trying different treatments and either they help some or they don't and they move on. I do think your doc has a good point of how serious the endo is and that sometimes, although the pain didn't go away for you last time, a lap will maybe help to clear things out so that you could maybe get started on a treatment plan to maybe get some endo under control. It is hard to trust that your doc is correct (not to say she is wrong), so if you are able, maybe you could get a second opinion. I hope I was a bit helpful. Best of luck to you and I am sending warm thoughts to you today! HUGS~ Lori D.

At Tue, 30 Aug 2005, isa wrote: >
>Hello I'm Isa... I'm new to this list, don't know really how it works
>or who I'm talking to... English is not my mothertongue.. so please
>forgive my english... but I need some advice...
>
>I'm 25 and I'm diagnozed to have a severe endometriosis. I had a
>surgery last year to remove both endometriosis (8cms.) and adhesions,
>ovaries and utherous were fine and I kept them intact. After that I
>took danazol for 6 months, until last december. They did blood tests,
>and an ultrasound everything seemd to be ok. Since march this year I've
>been having a lot of pain during and after sexual intercourse and
>around ten days after my period. They thought it was colon problems, so
>I changed my diet and tooks osme pills... it didn't work, and got even
>worse... so I went back to my OBGYN and she ordered more tests and here
>we go again I have a mass of endometriosis just as big as the one she
>took out a year ago...
>
>It's very hard for me to belive it even after I've seen the
>ultrasound... and my OBGYN says that I will need another surgery. I'd
>like to wait and try alternative medicine, since what they did didn't
>work at all. But she says it very dangerous to wait, because the
>endometriosis tissue could cause some damage or complications.
>
>I don't know what to do... I know I have to do something, and the pain
>is getting worse... but all the surgery pain and the danazol was sooooo
>terrible I was really menopausic with depresions, cramps, bloating, no
>sexual desire... It was 6 months of hell... and it didn't work at all..
>
>Well I'll be waiting for any advice... sorry if this went soooo long
>but I'm really desperate...

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