ENDO Messages for August, 2005: Re: New to Site/ Endometriosis Treatment Help

Re: New to Site/ Endometriosis Treatment Help

From: Lori (anonymous@obgyn.net)
Tue Aug 30 12:54:51 2005

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Reply: G: "Re: New to Site/ Endometriosis Treatment Help"

Lindsay, sorry to hear that you have endo. It isn't fun and I am with you, it is so hard to make that decision. Unfortunately we can't help you decide, but I can tell you what my story is and maybe it'll help. I too was diagnosed with endo 7 years ago. They diagnosed me with stage IV endo. I do have 3 children, 2 on Earth and 1 in heaven. I don't like any of the treatment options. Maybe it is pure stuborness, but I don't like the side effects. My thinking is, we already have endo, we don't need a million other things going wrong so that we can have a limited time of pain free days, if even that. Luckily for some people, Lupron work, for me, it didn't help the pain and I had awful side effects. Hot flashes, leg cramps, moodiness, headaches, weight gain and the list goes on and on. Sorry to tell you this, I don't want to sound negative, but that is just my feeling on Lupron. Some other girls might tell you different and say it works well for them. A hysterectomy isn't a fun option. I do know women who have had them and things have gone well and then there are some that aren't as well either. But you are so correct, you have to be ready for one, it is a huge step. I am so sorry that I wasn't a bigger help, but I am here in case you ever need someone to talk to. I make a good listener. Hugs~ Lori D.

At Tue, 30 Aug 2005, Lindsay wrote: >
>This is my first visit to this web-site, although I was diagnosed with
>Endo about 7 years ago. I was having a tremendous amount of pain a few
>years ago and my dr recommended I go through a 6 month series of Depo
>Lupron, but before I had made a decision to do that, I was pregnant with
>my third child. My baby is now 2 and for the last several months the
>pain has steadily increased. I am 28 years old and feel like I am 90.
>Some days the pain is so unbearable I don't know what to do. Recently,
>I have had yet another ovarian cyst that has been monitored for the last
>5 weeks. The dr was hoping that the pain was not the endo but the cyst.
>Well, yesterday I was back in the dr office with excruciating pain and
>although the cyst is still there...they are reassuring me that this pain
>is endo and it is not going to just "go away".
>The treatment choices given to me are: Hysterectomy, Depo Lupron, or
>taking a chance that Laproscopy will give me a few "pain-free" months.
>
>I don't know what to do. I don't want to have a hysterectomy, not sure
>why, but just doesn't feel like a good choice for me. BUT, I have heard
>horror stories about the Lupron treatment and how horrible the side
>effects are and that a lot of times it isn't helpful. And the LAP
>surgery, well...is it worth having this done again???
>
>Someone help...just need some advice and maybe some history from those
>who have tried some of these treatment options.
>Thanks

Next message: isa: "need advice"
Previous message: tlm*: "Endometriosis, Interstitial Cystitis and other Pelvic Pain Syndromes"
In reply to: Lindsay: "New to Site/ Endometriosis Treatment Help"
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