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Re: New to Endo

From: Alyson (anonymous@obgyn.net)
Tue Aug 23 12:03:20 2005


Claire, I understand your skepticism. I was diagnosed with endo last year following a laproscopy. Prior to that I had confusing symptoms. I have no children, in fact I rarely even had a period (which was later diagnosed as polycystic ovaries). When I did have one it wasn't pleasant, but not excruciating either. My pain felt like a little stabbing in my ovaries. my doctor mentioned endo, I researched it and thought "How can I have this when I don't even have a period?". I had an ultra sound (in and out) which is when they discovered the polycystic ovaries, followed by a CAT Scan, then an upper GI and lower GI scan, then a colonoscopy! All this to rule out the possibility of an intestinal issue, and all found nothing. I finally relented to the laproscopy and sure enough there was the endo. It was large, well established and all over my uterus and uterosacral ligament. To tell you the truth...I would do the lap again any day over the colonoscopy!! ;-) And I still don't have a great handle on how you develop endo when you have no period, but its there! Things have gone down hill pain wise and I am now experiencing everything you have described and then some. One thing I have learned (especially from this site) is that endo doesn't necessarily follow the rules and that diagnosis is all about ruling out all the other possibilities. While surgery is a scary prospect there is no sure fire way to confirm or deny endometriosis without getting in there and having a look. Best of luck! I hope you find some answers soon. Alyson

At Tue, 23 Aug 2005, Claire wrote: >
>Hi There, I'm about to go in and have my first lap (as you all call it)
>for possible endo. I feel kind of skeptical about it, as I thought endo
>was something you always had and that it caused infertility....
>Well, I'm 35 and have two lovely children and had no problem conceiving
>them. Prior to them, I had uncomfortable periods but nothing that
>really required me to take regular painkillers. After my first child
>(c-section) my periods got heavy and a little more uncomfortable but
>still did not interfere with my day to day life. After my second child
>(c-section also), my periods have steadily got worse, heavy with clots
>but not major and about 7 days long - but like clockwork - 28days.
>Occasional need to use a heat pad or wheat pack.
>I have also had increasing right side pain around the ovary region, at
>first it definitely felt like it was something to do with my cycle, but
>then I got it mid cycle for about 5 days and then to be honest, since
>then I have probably only had 2 weeks where I have felt my usual self. I
>feel discomfort everyday in someway or another. (Is this normal with
>endo) esp on the right side, sometimes it feels like a burning sensation
>which radiates up my side round to my lower back. I also feel sometimes
>that my hip has a trapped nerve in there somewhere, sometimes a
>throbbing in my ovary and groin region, and sometimes some stabbing
>pains, but nothing that really doubles me over completely. Generally
>all round it feels a bit crampy and dragging. My bowels are a bit dodgy
>too sometimes. My specialist is pretty certain its endo related in some
>way or another..(but why don't I believe her)...Reading alot of messages
>over the last couple of days I have noticed alot of varied symptoms and
>many the same as mine. Is this it do you think or is it just adhesions
>or what? Possibly maybe since I've had to ceasers??
>Oh well, I hope someone could reply who has had all or any of this. Its
>a bit daunting going in for a lap when any result could come out of it.
>Thanks for reading my message, and for those of you in constant pain,
>well I'm thinking of you, as I'm beginning to know how it can get you
>down.
>Claire x




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