Re: New here...Intro
From: Amanda (anonymous@obgyn.net)
Tue Aug 23 07:11:42 2005
Hi Kim,
I cannot believe you also went to Dr. Moossavi!! Actually, I started
going to her in May 2005 for a pap and also for pelvic pain. She was
the one who told me it was all in my head. I am from the U.P. and went
to CMU for 5 years, but during that time I still would go to the doctors
up there, but I needed to establish one down here. She was of
absolutely NO HELP to me whatsoever. When I told her I was peeing a
lot, like 20+ times a day, she told me, and I quote, "well when you
drink a lot of fluid you tend to pee a lot." Then recommended maybe a
urologist. She just ignored every symptom I had, pelvic pain, painful
intercourse, abnormal periods. The results of my ultrasound came back
and she told me I had some cysts, and that she wasn't going to operate
and do a lap b/c quote "how would I explain to your family if something
happens to you while you are put under that I operated on a perfectly
healthy normal 25 year old girl." I thought that was enough to not go to
her again, but I went 3 more times. She once had me bring up my file to
her secretary, and her diagnosis for me, was "depression," that was the
last time I saw her.
I saw Dr. Swirtz once about 4 years ago for an ovarian cyst, and tried
to get in about a week ago to see him, but they do not accept my
insurance. I cannot believe that they put you on lupron without even
doing a lap. My gyno has mentioned it to me and I don't think I will
end up taking it because I want to have children as I don't have any
yet!!!
My boyfriend is from St. Louis, and I have a lot of friends from Alma
and St. Louis, it's a small world!! I am very interested in meeting up
with you and the other lady from Weidman, although it is hard for me to
find time. I have been working Monday thru Saturday 10 hour days. It's
pretty hectic.
So far I have had bad experiences with doctors, except for maybe the new
gyno I am seeing, but I've only seen her once so we'll see what happens.
I am so glad to have people in this area dealing with the same thing,
it's just nice to know I am not alone, as I have felt like I was for the
past few months. I was going nuts not knowing what to do or who to turn
to b/c the docs were of no help. AAARRGGGHHHH!!!!! So anyways, Email me
as you would like so we can talk more about "stuff" LOL. Take care,
keep in touch....Amanda
At Mon, 22 Aug 2005, Kim wrote:
>
>HI!
>
>I went to CMU so I'm experienced with the docs in both Isabella and
>Gratiot County. In fact, I lived in Alma and St. Louis for the past
>two years after graduating from CMU and just moved to Lansing a few
>months ago because I got a job down here. But I worked at the Gratiot
>County Herald for a year before this.
>
>Are you seeing Dr. Moossavi? She's the one that did my Lap...but I had
>to leave her because she wasn't very helpful when it came to my pain.
>She just kept suggesting physical therapy or pain management. I don't
>time for that stuff. Otherwise she's really good, honest and upfront. I
>liked that about her. I would probably continue seeing her if I didn't
>live down here.
>
>When I went to the OBGYN today, she asked me if I was from up north.
>When I told her I lived up there for 7 years, she said she could tell
>from all the experiences I had. She said the docs up there are horrible
>when it comes to Endo. She said most of her Endo patients come down
>from Mt. Pleasant, Clare and all those cities up there! So I guess
>we're not the only ones. Before I saw Dr. Moossavi I went to the
>Womens Medical Center in CMCH. That's where I found the OBGYN (Dr.
>Swirtz) that wouldn't do the surgery and simply put me on Lupron without
>knowing exactly what was wrong.
>
>So we should get together. I know a lady who lives in Weidman. She's
>33, already had a hysterectomy and her Endo has came back several times
>since. Her and her husband just adopted two children. Her and I get
>together about once a month to talk. We have our little support group
>and we've been looking for others who are interested in joining us. But
>since she's up there and I'm down here, we've decided to meet in Mt.
>Pleasant one month and then meet down here in Lansing the next month and
>go back and forth like that. If you're interested, let me know. She
>would be a good resource for you as well when it comes to the docs
>around there. Plus she's a nurse so she knows what she's talking about!
>
>I saw you left your email address, I'll have to email you.
>
>Take care and good luck Friday!
>
>--
>Kim
>
>At Mon, 22 Aug 2005, Amanda wrote:
>>
>>Hi Kim, I am sorry to hear how much you have been through, and your
>>mother also. I can relate. I also live in michigan, I live in mt.
>>pleasant and work in st. johns. I am 25.
>>
>>I got off birth control last spring, and started getting migraines in
>>october 2004. It seems like it all started there, and in May of this
>>year I started having pelvic pain and irregular periods. I also have
>>been having severe rectal pain at the time of my period for the past
>>year and a half. Endo also runs in my family.
>>
>>I started with a new gyno in May and she basically ignored my symptoms,
>>told me she thought it was all in my head, and put me on prozac. Which
>>was kind of a good thing to be on it b/c I have anxiety really bad, and
>>since I plan on getting pregnant soon, she told me prozac was safe to
>>take while pregnant.
>>I saw her numerous times, had a pelvic exam, ultrasounds, xrays,
>>urinalysis, you name it, I had it done, except for the lap b/c she
>>didn't believe my symptoms were real. The ultrasound showed a few cysts
>>on my right ovary, which se basically told me those wouldn't be causing
>>pain. I went back to see her for a check up a month later and was
>>having severe bladder problems. She referred me to a urologist. The
>>urologist diagnosed me with interstitial cystitis, and I scheduled an
>>appt. with a different gyno. I saw the new gyno once and she was very
>>concerned and agreed to do a lap a week later, which is this friday.
>>
>>I've went through about 4 months of nobody taking me seriously. I've
>>been in and out of ER's and Ready Care's and everything was coming up
>>negative. I have already been diagnosed with interstitial cystitis, and
>>I've heard endo and IC are the evil twins. I guess 80% of women with IC
>>also have endo. I will find out this friday whether I have endo or not.
>>
>>My doctor has not prescribed me anything for the pain. I have taken
>>tramadol (ultram) in the past for back pain and it seemed that when I
>>got off the tramadol I started having severe pain, but I cannot take the
>>ultram with prozac.
>>
>>I completely understand where you are coming from, and I have not had
>>good experiences so far with the doctors I've seen, except for this new
>>gyno, she seems to be really good. The urologist tested me for IC with
>>no anestesia, and from what I've read this isn't supposed to happen. He
>>did hydrodistention. Needless to say, that was the worst thing I've
>>ever been through in my life.
>>
>>I am still trying to deal with the every day pelvic pain and I believe
>>it is endo as well as the IC, and I am just waiting to find out what it
>>is so I can begin treating it properly.
>>
>>It's nice to have someone so close to home, this way we can maybe talk
>>about certain doctors in the area, which are good, which are bad. I
>>hope you are doing well, and you are in my thoughts and prayers. Any
>>questions feel free to email me amarion22@yahoo.com
>>
>>Take care and god bless,
>>Amanda
>>
>>At Mon, 22 Aug 2005, Kim wrote:
>>>
>>>Hi all. I don't think I ever really introduced myself. My name is Kim
>>>and I'm 26. I live in Lansing, MI. Anyone else from Michigan?
>>>
>>>I started having symptoms when I was 14, but none of the docs I went to
>>>would take me seriously. However one doc did put me on BC pills at age
>>>15 due to very irregular periods. Turns out he did the right thing
>>>without even really knowing it! LOL!
>>>
>>>When I was 17 or 18 my mom found out she had very severe endo and
>>>fibroids and all sorts of fun stuff. She hemorrhaged from all the
>>>problems she had and had to have an emergency hysterectomy. After that
>>>is when I started asking my docs if I had endo and that's why I had all
>>>these problems (headaches, bad cramps, irregular periods, etc.) However
>>>all the docs said I didn't have it.
>>>
>>>Well...after several ultra-sounds, Xrays and MRI's, my doc finally
>>>ordered a CT Scan of my pelvic region. The results came back saying I
>>>had "abnormalities consistent with Endo." At that point I went to a
>>>OBGYN who put me on Lupron for six months. It worked great for me.
>>>However he didn't want to do a Lap to officially diagnose me.
>>>
>>>So I finally went to another OBGYN and she did a Lap right away. Turns
>>>out both of my large bowels were adhered to my stomach lining and my
>>>right ovary was adhered to my sygmoid (spelling??) colon. There were a
>>>couple other adhesions, but I don't remember exactly.
>>>
>>>So, she cut it out and put me on continuous birth control. So I've not
>>>had an actual period since last November. Because of this I've been
>>>having really bad cramping all the time and A LOT of break-through
>>>bleeding.
>>>
>>>I went to a new OBGYN today and she gave me Ultram for my pain and told
>>>me to start having a period once every three months. So hopefully that
>>>helps.
>>>
>>>So I'm not scheduled to have another Lap...yet that is! It's just a
>>>matter of time though! LOL!
>>>
>>>So that's my story. Anyone have a similar experience with doctors
>>>telling you you didn't have endo and not listening? Just wondering
>>>because it seems like a common story!
>>>
>>>So that's my story!
>>>
>>>Take care all.
>>>
>>>--
>>>Kim in Lansing, Michigan
>>>
>--
>Kim in Lansing, Michigan
>
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