ENDO Messages for August, 2005: Re: New here...Intro

Re: New here...Intro

From: Amanda (anonymous@obgyn.net)
Mon Aug 22 18:10:07 2005

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Reply: Kim: "Re: New here...Intro"

Hi Kim, I am sorry to hear how much you have been through, and your mother also. I can relate. I also live in michigan, I live in mt. pleasant and work in st. johns. I am 25.

I got off birth control last spring, and started getting migraines in october 2004. It seems like it all started there, and in May of this year I started having pelvic pain and irregular periods. I also have been having severe rectal pain at the time of my period for the past year and a half. Endo also runs in my family.

I started with a new gyno in May and she basically ignored my symptoms, told me she thought it was all in my head, and put me on prozac. Which was kind of a good thing to be on it b/c I have anxiety really bad, and since I plan on getting pregnant soon, she told me prozac was safe to take while pregnant. I saw her numerous times, had a pelvic exam, ultrasounds, xrays, urinalysis, you name it, I had it done, except for the lap b/c she didn't believe my symptoms were real. The ultrasound showed a few cysts on my right ovary, which se basically told me those wouldn't be causing pain. I went back to see her for a check up a month later and was having severe bladder problems. She referred me to a urologist. The urologist diagnosed me with interstitial cystitis, and I scheduled an appt. with a different gyno. I saw the new gyno once and she was very concerned and agreed to do a lap a week later, which is this friday.

I've went through about 4 months of nobody taking me seriously. I've been in and out of ER's and Ready Care's and everything was coming up negative. I have already been diagnosed with interstitial cystitis, and I've heard endo and IC are the evil twins. I guess 80% of women with IC also have endo. I will find out this friday whether I have endo or not.

My doctor has not prescribed me anything for the pain. I have taken tramadol (ultram) in the past for back pain and it seemed that when I got off the tramadol I started having severe pain, but I cannot take the ultram with prozac.

I completely understand where you are coming from, and I have not had good experiences so far with the doctors I've seen, except for this new gyno, she seems to be really good. The urologist tested me for IC with no anestesia, and from what I've read this isn't supposed to happen. He did hydrodistention. Needless to say, that was the worst thing I've ever been through in my life.

I am still trying to deal with the every day pelvic pain and I believe it is endo as well as the IC, and I am just waiting to find out what it is so I can begin treating it properly.

It's nice to have someone so close to home, this way we can maybe talk about certain doctors in the area, which are good, which are bad. I hope you are doing well, and you are in my thoughts and prayers. Any questions feel free to email me amarion22@yahoo.com

Take care and god bless, Amanda

At Mon, 22 Aug 2005, Kim wrote: >
>Hi all. I don't think I ever really introduced myself. My name is Kim
>and I'm 26. I live in Lansing, MI. Anyone else from Michigan?
>
>I started having symptoms when I was 14, but none of the docs I went to
>would take me seriously. However one doc did put me on BC pills at age
>15 due to very irregular periods. Turns out he did the right thing
>without even really knowing it! LOL!
>
>When I was 17 or 18 my mom found out she had very severe endo and
>fibroids and all sorts of fun stuff. She hemorrhaged from all the
>problems she had and had to have an emergency hysterectomy. After that
>is when I started asking my docs if I had endo and that's why I had all
>these problems (headaches, bad cramps, irregular periods, etc.) However
>all the docs said I didn't have it.
>
>Well...after several ultra-sounds, Xrays and MRI's, my doc finally
>ordered a CT Scan of my pelvic region. The results came back saying I
>had "abnormalities consistent with Endo." At that point I went to a
>OBGYN who put me on Lupron for six months. It worked great for me.
>However he didn't want to do a Lap to officially diagnose me.
>
>So I finally went to another OBGYN and she did a Lap right away. Turns
>out both of my large bowels were adhered to my stomach lining and my
>right ovary was adhered to my sygmoid (spelling??) colon. There were a
>couple other adhesions, but I don't remember exactly.
>
>So, she cut it out and put me on continuous birth control. So I've not
>had an actual period since last November. Because of this I've been
>having really bad cramping all the time and A LOT of break-through
>bleeding.
>
>I went to a new OBGYN today and she gave me Ultram for my pain and told
>me to start having a period once every three months. So hopefully that
>helps.
>
>So I'm not scheduled to have another Lap...yet that is! It's just a
>matter of time though! LOL!
>
>So that's my story. Anyone have a similar experience with doctors
>telling you you didn't have endo and not listening? Just wondering
>because it seems like a common story!
>
>So that's my story!
>
>Take care all.
>
>--
>Kim in Lansing, Michigan
>

Next message: Wendy: "Partial hysterectomy .....anyone had a good outcome?"
Previous message: G: "Re: lupron or hysterectomy??"
In reply to: Kim: "New here...Intro"
Next in thread: Kim: "Re: New here...Intro"
Reply: Kim: "Re: New here...Intro"

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