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Re: endo or not endo?
From: Lori (anonymous@obgyn.net)
Wed Aug 17 11:42:45 2005
Jodi,
You poor thing, I am so sorry! What a terrible ordeal you have been
through. My suggestions are short and few, but I do think you sound
like you have been suffering long enough and still you aren't sure what
you have. It sounds like it could be endo. Have you considered finding
a different doctor for a second opinion? I think getting a second
opinion is very important. It helps you on your decisions also. My
sister has experienced passing out and large clots also. One time in
the shower she passed a clot the size of an apple. Her doc's haven't
been of much help, but I do sympathize so much with her and you! I can't
tell you much more for suggestions, although I do say I find Darvocet to
be my only major relief and it sure is no life taking med's all the
time, is it? Please know that I care and I will be supportive along
wilth many of the girls on this forum, we want to help and support
eachother. I am wishing you the best!
Hugs~
Lori D.
At Wed, 17 Aug 2005, Jodi wrote:
>
>I am a 28 year old young lady who has suffered through HORRIBLE periods
>since I was 16. I have been on all kinds of birth control pills. I
>would get cramps a few days before my period would start but the
>"earthquake" would hit the first day. I would get so bad sometimes I
>would pass right out & sometimes I would throw-up. I would bleed
>heavily for the first day - there would be lots of clots too. Then the
>bleeding would be minimal for the next 2-3 days. Then I would spot
>during some months. My doctor (actually for the first few years I was
>only going to a NP) would then change my birth control pill. This went
>on for a few years then I decided to go to an OB/GYN. We had played
>around for a about 1 1/2 years w/ switching pills & running tests. So
>then he decided to a laporoscopy. That ending up showing nothing. So,
>he treated me as I had endo but really didn't see anything. Then about
>1 year later after the symptoms were the same he had me have a
>colonoscopy done, that showed nothing. Then he decided to send me to a
>specialist who put me on the Lupron Depot shots - 1 a month for 6
>months. After I was finished w/ the shots, it took about 4 months until
>I got my period. The first one wasn't bad, but as they went on they
>seemed to get worse. I'm not to the point were I was before & they were
>so horrible but it's still a nightmare to live w/. I was never really
>diagnosed w/ endo but was just told I had symptoms like endo. I am
>married & would like to have a child someday - not in the near future
>but down the road. I am worried that there is more to my "case" then
>they really are telling or finding out. I have been on ogestrol for the
>past 2 months & I continue it w/out taking the "sugar pills". Things
>have been fine, but I know w/ how things have gone in the past...give it
>a few more months & I'll be right back to the beginning. I have tried
>everything - hot baths, heating pad, Advil (almost 6-8 a day), vitamins,
>etc - the only thing that seems to help is my pain pill (darvocet w/
>codeine) but I can't really work or drive while I'm on that. I'd
>appreciate any help or advice.
>Desperate!!
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