ENDO Messages for August, 2005: Re: Endometriosis/ PCOS

Re: Endometriosis/ PCOS

From: Alyson (anonymous@obgyn.net)
Sat Aug 6 20:58:46 2005

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Reply: Kristy: "Re: Endometriosis/ PCOS"

Kayla!! I have PCOS and endo as well. You are the first person I have come across with both of these issues! I was first diagnosed with the PCOS last year after spending several years having doctor after doctor tell me that it is normal for some women not to have a period. Then I started having pain, even though I wasn't having a period. I finally found a doctor that listened to me and diagnosed the PCOS. Apparently I didn't fit the "profile". Any way, the pain didn't go away and that's when they diagnosed the endo with a lap. I was put on the pill to supposedly help both the PCOS and the endo. But having a period is excrutiating and I wonder why I bother, especially when it isn't helping at all. I know it is possible to get pregnant and carry a baby to term with the PCOS. My mother had PCOS and I have two siblings. So does a dear friend and she just had her second child. They say that PCOS works itself out after your first pregnancy. I know that isn't much consolation since the endo brings a whole other problem into the mix. Endo and PCOS is so confounding because if you want a child you have to somehow force yourself to ovulate, which in turn means horrible pain. My doctor suggested that if I decide to have children it may be necessary to see an infertility specialist- she also told me if I want to have kids I need to get busy. Someone recently suggested Depo Provera SubQ as an alternative to Lupron with excellent results and less of the nasty side effects. I'm going to ask about it at my next appointment. I understand the pressure of trying to decide how to best treat your pain, live your life and somehow make a decision to have a child in the midst of all that. You are given this time line that seems so absolute, but nothing else in your life follows that. If you want to talk more, feel free to e-mail me. Alyson

At Sat, 6 Aug 2005, Kayla wrote: >
>Hi, I'm so glad I found this site! I am 22 years old and was diagnosed
>with endo a year ago although I know this is something I've had for a
>long time. I also have PCOS, lucky me. These are both infertility
>conditions and are very painful. I've never been able to talk to anyone
>that is going through the same thing as me. I've had excruciating
>periods for as long as I can remember and pain in between periods. I
>really want a baby and don't think that this is going to happen. I was
>told I have until I am 24 because the endo was so bad when they did my
>lap. I will be 23 soon and just got off of seven monthes of Lupron
>which was horrible and and hasn't helped me. It's been three monthes
>since the lupron ended and I still haven't gotten my period because with
>the PCOS I never know when I am going to get it. I have to be on birth
>control in order to get my period and when I do get it I am in bed for
>four days a month. I cant win either way!! I got pregnant after my
>laproscopy last year and had a miscarriage 7 weeks into the pregnancy:(
>No one in my family understands what I am goingthrough and that makes it
>so haed to deal with. When I try talking to my family and friends they
>don't know what to say, they think i am making the pain out to be worse
>than it actually is. If only they knew, not to mention the emotional
>side affects I go through dealing with the pain and the constant empty
>feeling from the miscarriage. If anyone has been on the Lupron can you
>let me know if it helped you? I don't think it has helped me and I have
>to go back to the Dr on next week to get my periods started again.
>Please help!!!!!!

Next message: Bev: "Re: endo after hysterectomy"
Previous message: Shannon: "Does anyone know if you can get disability?"
In reply to: Kayla: "Endometriosis/ PCOS"
Next in thread: Kristy: "Re: Endometriosis/ PCOS"
Reply: Kristy: "Re: Endometriosis/ PCOS"

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