ENDO Messages for August, 2005: Re: new to group

Re: new to group

From: Alyson (anonymous@obgyn.net)
Fri Aug 5 14:50:30 2005

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Jill,

I have had a lot of luck with accupuncture. It never took the pain away entirely, but the number of really bad days I had dropped significantly. The process takes time, the chinese treat the whole body and believe most symptoms are interrelated. My periods were a bit easier, much less clotting. My bm's were more regular and less painful, and my bladder pain decreased. I think one of the best aspects of it was having someone who truely listened to me, asked questions, showed concern. Saturday mornings quickly became the most exciting part of my week. If nothing else it was an hour out of my day where someone was helping me relax and truely doing everything they could to help me. My accupuncturists also used herbal therapy, that's probably something you would want to clear with your doctors first. If you can find a medical accupuncturist (an M.D. practicing a hybrid east/west kind of medicine) that might be the best bet for you. The only draw back is that it can be pricey. Some insurance companies cover part of the appointment or provide a discount. Just an idea! Alyson

At Fri, 5 Aug 2005, Jill wrote: >
>Well I decided that i would join this support group to have others to
>talk to about my diseases. I was diagnosed with endometriosis 4 years
>ago when i was 25. It took about two years of horrific pain during sex
>and off and on pain for no reason. A lot of people thought it was in my
>head also. Well about a year after that I was diagnosed with
>interstitial cystitis. After the procedure to to diagnose the IC it had
>gone into remission with the help of Elmiron also. After the surgery
>for the endo that had subsided. So after about 6 months of Elmiron it
>helped rid my pain... until about 6 months ago when I started having
>pain again. Well my luck the endo is coming back and it is making my IC
>flare up. It is so frustrating because on top of that i have a kidney
>disease that I was diagnosed with about 3.5 years ago. I get so
>discouraged because non of my 4 doctor's will give me anything for the
>pain because of my kidneys. I am not a complainer usually. I tend to
>just deal with the pain but it is starting to effect my job and I don't
>know what to do. I have heard that percocets are not rid through the
>kidneys therefore you would think that they would give me those. Does
>anyone know if this is true? Or on any advice on how to get rid of the
>pain? I have flank pain, front bladder area and i don't what they would
>call it but i have pain that is between my legs that shoots down my left
>leg. Sorry this is so long!

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