|
Re: 25 in FL
From: Alyson (anonymous@obgyn.net)
Thu Aug 4 22:00:31 2005
Hey Vicki,
My doc is still pushing the IBS issue. I can't seem to convince her
that isn't what is going on despite all of the GI tests. Right now the
only meds I am on are Seasonale, Percocet, and Naprocin. The doc is
pushing Lupron hard, but hasn't discussed any other options with me. I
don't have as much nausea as I do issues on the 'other end'. I saw the
web site for the center in Delray. I haven't gotten too far with
investigating it. I'll let you know if I find out anything useful.
Thanks so much for the communication. Its nice to talk to someone near
by.
Alyson
At Thu, 4 Aug 2005, vicki wrote:
>
>Alyson,
>I also have gone threw 3 colonospy's and also scoped my down my throat 2
>times. nothig was found I had been scoped in October of 04 and also had
>an MRI and they saw nothing the doctors tossed it up to IBS, spastic
>colon. so basically they had no idea what was wrong with me. Then in
>May i had emergency surgery. I managed to grow the cysts in 6 months.
>It was growning basically an inch a month. I am in ocala right now and
>am going to the west coat in a couple of weeks. There is a endo
>research center in Delray Beach. From what I saw on the web site it
>looked promicing. Are you on any meds right now??
>I take the anti-nausa meds everyday and that seems to work for me. You
>can buy it in a pharmacy.
> GoOd Luck
> Vicki
>
>At Wed, 3 Aug 2005, Alyson wrote:
>>
>>Vicki,
>>I was diagnosed with endo a little over a year ago. I recently started
>>experiencing nausea, cramps (like period cramps) after eating, and
>>painful bowel movements. My doctor also told me that it was something
>>gastro intestinal and sent me to a GI specialist. I had and MRI of my
>>upper bowel and a colonoscopy (not fun). The specialist told me before
>>he did the proceedures that he was 95% sure it was the endo causing my
>>symptoms. He also did not believe the symptoms were caused by irritable
>>bowel syndrome. After the tests showed nothing he was convinced it was
>>definately the endo. My doctor however still brushes the symptoms off
>>as being a bowel issue. It is incredibly frustrating.
>>
>>I also live in Florida on the east coast. If you are in this area, the
>>only doctor I've heard that is good is Ronald T. Ackerman in West Palm
>>Beach. I have not personally seen him though. I am also looking to
>>change doctors, if you are on the southeast coast and hear of anyone
>>else that's good will you let me know?
>>
>>--
>>Alyson
>>At Tue, 2 Aug 2005, vicki wrote:
>>>
>>>I am 25 years old and have endo. All my life I had no pain what so ever
>>>until may 18,2005.I thought I was dying. I never experienced pain like
>>>this before. I went to the er had to have emgerency surgery. I had 2
>>>cysts on my overies. My left one reptured, they were both chocolate
>>>cysts, They were both 6 inches. Wow I had grapefruits in me. I was so
>>>scared.. After 2 blood transufions, my 9inch long incesion kept opening
>>>up had to have it stiched 2 times. Finally closed last month. I had
>>>the leup. shot and it was horrible. All I did was sweat my butt off.
>>>Everyone around me would be freezing and I was dripping wet. I am now
>>>taking a pill named aygestin. Now I am up to 8mg of this every 2 weeks
>>>the doctor keeps uping my dosage.I can only go up to 14 mg. Nothing is
>>>working.I have horrible cramps and its gets so much worse when I have
>>>intercorse.I have tryed narcodicts. But they put me to sleep. I also
>>>have IBS and I am convinced after reading all about endo. That its endo
>>>I have not IBS.I have to take 4 tablespoons of anti-nausa med in the am.
>>>This medican makes me sick to my stomach. I am seeing a sepcialist in
>>>Gainsville. The Doctor told me the next step is a laparascopy. How
>>>many more will I have to do?? This is crazy. Some days I wake up and I
>>>am somewhat
>>>normal and can get out of bed and do simple things like go to the store
>>>and other days I cant get out of bed. I have such a drastic drop in
>>>energy Since the surgery.I used to go to the gym everyday for 2 hours.
>>>Since the surgery I put on 10 lbs. At times I feel like I am so alone
>>>and no one understands. Does anyone have any helpfull advise or words
>>>of wisdom to help me. Or even a great doctor in FL.
>>> Thank you
>>> Vicki
>>
|
|
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)