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Re: 25 in FL
From: vicki (anonymous@obgyn.net)
Thu Aug 4 15:31:48 2005
Alyson,
I also have gone threw 3 colonospy's and also scoped my down my throat 2
times. nothig was found I had been scoped in October of 04 and also had
an MRI and they saw nothing the doctors tossed it up to IBS, spastic
colon. so basically they had no idea what was wrong with me. Then in
May i had emergency surgery. I managed to grow the cysts in 6 months.
It was growning basically an inch a month. I am in ocala right now and
am going to the west coat in a couple of weeks. There is a endo
research center in Delray Beach. From what I saw on the web site it
looked promicing. Are you on any meds right now??
I take the anti-nausa meds everyday and that seems to work for me. You
can buy it in a pharmacy.
GoOd Luck
Vicki
At Wed, 3 Aug 2005, Alyson wrote:
>
>Vicki,
>I was diagnosed with endo a little over a year ago. I recently started
>experiencing nausea, cramps (like period cramps) after eating, and
>painful bowel movements. My doctor also told me that it was something
>gastro intestinal and sent me to a GI specialist. I had and MRI of my
>upper bowel and a colonoscopy (not fun). The specialist told me before
>he did the proceedures that he was 95% sure it was the endo causing my
>symptoms. He also did not believe the symptoms were caused by irritable
>bowel syndrome. After the tests showed nothing he was convinced it was
>definately the endo. My doctor however still brushes the symptoms off
>as being a bowel issue. It is incredibly frustrating.
>
>I also live in Florida on the east coast. If you are in this area, the
>only doctor I've heard that is good is Ronald T. Ackerman in West Palm
>Beach. I have not personally seen him though. I am also looking to
>change doctors, if you are on the southeast coast and hear of anyone
>else that's good will you let me know?
>
>--
>Alyson
>At Tue, 2 Aug 2005, vicki wrote:
>>
>>I am 25 years old and have endo. All my life I had no pain what so ever
>>until may 18,2005.I thought I was dying. I never experienced pain like
>>this before. I went to the er had to have emgerency surgery. I had 2
>>cysts on my overies. My left one reptured, they were both chocolate
>>cysts, They were both 6 inches. Wow I had grapefruits in me. I was so
>>scared.. After 2 blood transufions, my 9inch long incesion kept opening
>>up had to have it stiched 2 times. Finally closed last month. I had
>>the leup. shot and it was horrible. All I did was sweat my butt off.
>>Everyone around me would be freezing and I was dripping wet. I am now
>>taking a pill named aygestin. Now I am up to 8mg of this every 2 weeks
>>the doctor keeps uping my dosage.I can only go up to 14 mg. Nothing is
>>working.I have horrible cramps and its gets so much worse when I have
>>intercorse.I have tryed narcodicts. But they put me to sleep. I also
>>have IBS and I am convinced after reading all about endo. That its endo
>>I have not IBS.I have to take 4 tablespoons of anti-nausa med in the am.
>>This medican makes me sick to my stomach. I am seeing a sepcialist in
>>Gainsville. The Doctor told me the next step is a laparascopy. How
>>many more will I have to do?? This is crazy. Some days I wake up and I
>>am somewhat
>>normal and can get out of bed and do simple things like go to the store
>>and other days I cant get out of bed. I have such a drastic drop in
>>energy Since the surgery.I used to go to the gym everyday for 2 hours.
>>Since the surgery I put on 10 lbs. At times I feel like I am so alone
>>and no one understands. Does anyone have any helpfull advise or words
>>of wisdom to help me. Or even a great doctor in FL.
>> Thank you
>> Vicki
>
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