Re: Confused and Frustrated!!!!!!!!!!!!
From: Alyson (anonymous@obgyn.net)
Thu Aug 4 14:10:02 2005
Amanda,
I know you've been bouncing from doctor to doctor, but its my opinion
that you really need to find a decent Gynecologist. I went to four
doctors before being diagnosed. My doctor told me there is no reason
any one should be in that kind of pain without a cause. I too started
out with several small cysts and was finally diagnosed with poly cystic
ovaries. After that diagnosis I kept complaining of pain and my doc did
say that the cysts shouldn't be causing that and scheduled a laproscopy
to see what was going on. At that point she found the endo.
I think the best thing you can do as a patient is learn everything you
can about all of the possibilities and insist on a standard of care,
even if it means switching doctors. Unfotunately it may take awhile to
find the right doctor. I am still moving around. Even though my last
doc finally diagnosed me, she hasn't done much in the treatment area.
I'm hoping this next one will be a keeper!
There is a list of patient recomended doctors at
http://www.geocities.com/endovictims/
Maybe you can find one in your area.
Best of luck,
Alyson
At Thu, 4 Aug 2005, Amanda wrote:
>
>I am new to this and I found you all by doing a search for endo and
>interstitial cystitis as that is now what my doctors think I may have.
>The pain just started coming on in May of 2005 and when I told my gyno
>about it she did a pelvic exam and ultrasound. When the results came
>back she said they were normal except for a few small cysts on my right
>ovary, which she said was nothing that could be causing pain. I asked
>her about endo and she said no way because during the pelvic exam i
>didn't even flinch. She proceeded to tell me it was all in my head and
>put me on anti-depressants. Well it is now three months later and I am
>in constant pain. I am seeing a urologist because I am having severe
>urination problems, but many tests have shown there is no infection. I
>do not have kidney stones and I had to go to the ER to find that out. I
>am urinating much too frequently, at one point I was going 20+ times a
>day. I have constant pain and pressure in the bladder area, painful
>bowels and also pain in the general anal area. It often hurts to sit
>down, and when I brought this up to my doctors they told me I had an
>internal hemmoriod. Lately, for the past month probably, I have had
>this pain in the pelvis area that feels like period cramps, even though
>I am not on my period. The last period I had about 2 weeks ago was one
>of the most painful ones I have ever had. As I tell my gyno all of this
>she tells me it's normal and to take some aleve 2 days before my period
>is supposed to start. I have come to the conclusion that she is
>convinced it is all in my head so I have moved on to a urologist who
>will refer me to a better gyno if need be. The urologist, however, is
>treating me as if I'm a junkie off the street trying to get pain meds. I
>am 25 years old, I am an accountant, and I have a very good life going
>for me. I am scheduled for a cystoscopy on August 15 with the urologist
>and when I saw him on the 26th of July he had prescribed me some vicodin
>for the pain. It is now over a week later and I am in constant pain and
>going out of town for over a week so I call to ask for a refill, he
>tells me he doesn't feel comfortable prescribing me pain medication b/c
>he doesn't have a diagnosis for me yet. The reason I don't have a
>diagnosis is because I keep getting bounced around from doctor to doctor
>and everyone thinking it is in my head. I think "psychosematic" is the
>word they use. Why would I spend all this money in dr. bills, go to
>ready care 3 times, go to ER, go to urology to have a catheder inserted
>in my uretha...just to get pain meds??????? I am very upset and very
>frustrated at the way I am being treated by these doctors.
>
>It feels very good to get that out!! AGain!!! Reading all of your
>stories has helped me out alot and I wish everyone good luck, if you
>have any advice for me please let me know as I am very frustrated and
>confused!!!!!
>
>Thank you all, Amanda
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