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Re: Confused and Frustrated!!!!!!!!!!!!
From: Amanda (anonymous@obgyn.net)
Thu Aug 4 14:00:42 2005
Thank you for your response Jenn. And it really does help to know that
I am not the only one going through this. I am very glad I found this
site, it's a little easier knowing that my symptoms are real, and other
people experience them too. I guess for a little while in the beginning
I myself was starting to think it was all in my head because that's what
they kept telling me. I now know differently. Even though it is very
depressing to go through all of this at the age of 25 (and I feel even
more for those going through it at a younger age), I know that something
is not right. I hope to have answers soon as to why I am having so many
problems, and hopefully I can find a doctor who actually cares and
understands what I am going through. I don't know if I can handle
feeling like this every day as I have been for the past couple months!!
Thanks again for your response, and I will keep you posted!!!
Amanda
At Thu, 4 Aug 2005, Jenn wrote:
>
>Amanda I amso sorry to hear what you hve been through, but if it helps
>we have all been there. Dr don't seem to care when it comes down to
>this and all they do is give pain meds or assume your a junkie. I know
>it is very hard and frusterating but hang in there it will all get
>better.
>Read my monster under the bed. It will explain exactly what your going
>through we've all been there and I am so sorry to hear that you are
>being tossed around like a rag doll. But it will all get sorted our
>eventually.
>Hugs to you and hang in there girl were here for you. Jenn
>
>At Thu, 4 Aug 2005, Amanda wrote:
>>
>>I am new to this and I found you all by doing a search for endo and
>>interstitial cystitis as that is now what my doctors think I may have.
>>The pain just started coming on in May of 2005 and when I told my gyno
>>about it she did a pelvic exam and ultrasound. When the results came
>>back she said they were normal except for a few small cysts on my right
>>ovary, which she said was nothing that could be causing pain. I asked
>>her about endo and she said no way because during the pelvic exam i
>>didn't even flinch. She proceeded to tell me it was all in my head and
>>put me on anti-depressants. Well it is now three months later and I am
>>in constant pain. I am seeing a urologist because I am having severe
>>urination problems, but many tests have shown there is no infection. I
>>do not have kidney stones and I had to go to the ER to find that out. I
>>am urinating much too frequently, at one point I was going 20+ times a
>>day. I have constant pain and pressure in the bladder area, painful
>>bowels and also pain in the general anal area. It often hurts to sit
>>down, and when I brought this up to my doctors they told me I had an
>>internal hemmoriod. Lately, for the past month probably, I have had
>>this pain in the pelvis area that feels like period cramps, even though
>>I am not on my period. The last period I had about 2 weeks ago was one
>>of the most painful ones I have ever had. As I tell my gyno all of this
>>she tells me it's normal and to take some aleve 2 days before my period
>>is supposed to start. I have come to the conclusion that she is
>>convinced it is all in my head so I have moved on to a urologist who
>>will refer me to a better gyno if need be. The urologist, however, is
>>treating me as if I'm a junkie off the street trying to get pain meds. I
>>am 25 years old, I am an accountant, and I have a very good life going
>>for me. I am scheduled for a cystoscopy on August 15 with the urologist
>>and when I saw him on the 26th of July he had prescribed me some vicodin
>>for the pain. It is now over a week later and I am in constant pain and
>>going out of town for over a week so I call to ask for a refill, he
>>tells me he doesn't feel comfortable prescribing me pain medication b/c
>>he doesn't have a diagnosis for me yet. The reason I don't have a
>>diagnosis is because I keep getting bounced around from doctor to doctor
>>and everyone thinking it is in my head. I think "psychosematic" is the
>>word they use. Why would I spend all this money in dr. bills, go to
>>ready care 3 times, go to ER, go to urology to have a catheder inserted
>>in my uretha...just to get pain meds??????? I am very upset and very
>>frustrated at the way I am being treated by these doctors.
>>
>>It feels very good to get that out!! AGain!!! Reading all of your
>>stories has helped me out alot and I wish everyone good luck, if you
>>have any advice for me please let me know as I am very frustrated and
>>confused!!!!!
>>
>>Thank you all, Amanda
>
>--
>Thankyou bella - JENN
>
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