ENDO Messages for August, 2005: Re: endometriosis and etc

Re: endometriosis and etc

From: Amanda (anonymous@obgyn.net)
Thu Aug 4 10:43:17 2005

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At Fri, 29 Jul 2005, julie wrote: >
>hi all. is there any one else in michigan that is out there? i have
>endo and have had for many years. i have many laprascopies and have
>done many treatments..... id love to email all that reply....... thanks
>lilac_lady164@hotmail.com subj line endo...... thxs again

Hi Julie,

I am new to this as I was doing a search on the internet for endometriosis and interstitial cystitis when I came across this site. I also live in michigan. Unfortunately nobody has been able to diagnosis exactly what I have and I have been in and out of doctor's offices, ER's, you name it for the past two months. It started out that I was having pain in the lower right area of my pelvis, and told my gyno this and she ordered a pelvic exam and ultrasound. The results came back and she had me come in to tell me that she thought it was all in my head b/c the results showed only a few ovarian cysts, and that it couldn't be endo b/c i didn't even flinch during the pelvic exam, and put me on prozac. Being that I told her I wanted to get pregnant soon and that I do have anxiety she recommended prozac saying it would help me with the anxiety and I could take it while being pregnant. For the next month I went to the Ready Care 3 times thinking I had a urinary tract infection, come to find out there were no infections. When I saw my gyno again 30 days later, I told her my problems, and she again told me it was all in my head and put me on yet another anti depressant. At this time she recommended seeing a urologist. I've seen the urologist once, and am going back in a few weeks for a cystoscopy.

There have been talks of endo and ic from both doctors, but at the same time they don't seem to be taking me seriously. I have been in constant pain for 2 months now. At one point I was urinating 20+ times a day, with constant pressure and pain in the bladder area as well as the pelvis. It is very disabling and it is affecting everything I do. The more I read about endo and IC the more I realize how similar my symptoms are to everyone else's. I am having bowel pain, pelvic pain, bladder pain, back pain, and although it's not the worst pain ever, it still is disabling. I am so uncomfortable every day, and when I ask my doc for something for the pain they tell me to take aleve or advil. Now I have tried every type of over the counter pain relief I can find and nothing seems to work. My doc once prescribed me vicodin and I told him it really helped and when I called for a refill he said he didn't feel comfortable refilling it when he doesn't even have a diagnosis for me yet. I am so miserable and all of this being bounced around from doctor to doctor is driving me crazy as the pain gets worse with every day that goes by. I am now getting no sleep because I am waking up in the middle of the night so often in pain.

Wow it felt good to get that out!!! I really have nobody to talk to except my boyfriend who is very understanding. I guess I am wondering if you have any suggestions??? And being that you are from michigan do you know of any good doctors??

Thank you for taking the time to read my story, I really truly appreciate it, and I hope all is well with you and hope it all works out for you:)

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