Re: any positive lupron experiences?
From: anonymous (anonymous@obgyn.net)
Tue Aug 2 21:25:04 2005
At Tue, 2 Aug 2005, Alyson wrote:
>
>Thank you for your frank response. I have been doing alot of research
>and am mostly frightened by the side effects. My endo seems to be
>advancing quickly. A lapro last year had no effect and in fact my
>symptoms seemed to worsen afterwards. I guess maybe I am struggling
>with whether or not I feel miserable enough now to warrant the potential
>misery of the Lupron side effects.
>
>My doctor seems to glance over the side effects as if they are not
>likely to occur and "they just have to tell you about the
>possibilities". I definately want to be sure I know what I am getting
>myself into before I take something so disruptive.
>
>I will definately look into the Depo. That is an option that has not
>yet been mentioned to me.
>
>Thanks!
>
Did the Lupron thing last year and it did it's thing for about 8 months
and then I got the endo back again. Yes the side effects suck and I
don't think I will do it again. I got the headaches and the joints got
bad and the weight gain that's still hard for me to get off. It was
great not having a period, but when you go off and get the period again
the endo more than likely will come back. Had my third laprascopy 3 wks
ago and now have to make a decision on where to go next with a
treatment. DOn't want a hysterectomy that in in self is a whole other
BIGGER mess, so I really need to discuss ALOT of options with my DR. If
I don't like what I hear I'll get another opinion. Going on drugs is
not something I want to do either, I'd rather try something more
natural, but I'll see what happen with my DR. first tomorrow. Good
luck on your decision.
>At Tue, 2 Aug 2005, Weebs wrote:
>>
>>Lupron has been working for me.
>>
>>I have stage IV endo. I had a lapartomy about 5 weeks ago for removal
>>of endo and adhesions. My cul-de-sac was completely filled, my uterous
>>was STUCK to my bowels, as was my left ovary & tube. I also had endo on
>>both my urine tubes.
>>
>>As for the Lupron, I took two shots BEFORE the surgery, which helped the
>>gyn and surgeon see everything to remove it. This is unusual. Lupron
>>shouldn't be taken before surgery, except in extreme cases. It DID work
>>for me, in that area. Some of the endo had shriveled up, making it
>>easier to remove and to see other spots of endo.
>>
>>Be prepared, Lupron will make you feel WORSE for the first shot or two.
>>The reason is that your ovaries become "shocked" by the missing
>>substance that Lupron removes, and they OVERPRODUCE estrogin at first.
>>It takes a few weeks (sometimes more for others) for your body to
>>"level" out and stop producing estrogin altogether.
>>
>>Plus, the side effects of Lupron aren't fun. Hot flashes, bone loss,
>>creaky joints, headaches, etc. These are the same symptoms women feel
>>during menopause. I won't sugar coat it. The side effects suck.
>>But for me, they are better then the pain.
>>
>>Every person is different. Some people have had horrible, long lasting
>>effects from Lupron. Some people have had positive results with removal
>>of pain while on Lupron.
>>
>>Just don't be fooled. Lupron is only a BAND-AID, because the endo WILL
>>come back after treatment stops. The only way to get rid of endo &
>>adhesions is to have surgery to have those areas of endo cut out. And
>>even with surgery, there is always the chance that endo will come back
>>in different areas. Plus, the more surgeries you have, the more likely
>>you are to get adhesions/scar tissue. Adhesions are not fun! They can
>>cause rectal blockages and many other problems.
>>
>>Basically, taking Lupron is like playing russian roulette. You never
>>know if the "bad" bullet is goign to strike you. Thankfully, it has
>>worked great for me, so far. I have 2 more shots and then I am done
>>with the treatment, and only then will I know if the Lupron will leave
>>long lasting side effects.
>>
>>You might want to ask your doctor about the new Depo-Provera. It is
>>called Depo-Provera SUBQ. Search it out on google and read about it. It
>>is supposed to stop your periods, with less bone loss then Lupron or the
>>orginal Depo.
>>
>>Please search around the internet and read as much as you can about
>>Lupron before making a decision to take it. The more info you have, the
>>better. I wish I could tell you that it will work for you, but every
>>person is different.
>>
>>At Tue, 2 Aug 2005, Alyson wrote:
>>>
>>>I'm just wondering if there is anyone out there who has had a good
>>>experience on lupron. My doc is pushing it and I'm trying to make a
>>>decision. It seems all patient info about it is negative. Does it work
>>>for anyone?
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