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Re: Anyone have SI joint ,and Tailbone/Butt pain from Endo? To Tracey
From: Amy (anonymous@obgyn.net)
Tue Aug 2 15:14:24 2005
Tracey,
Glad I helped a little. Sometimes the only thing that saves me from the
loony bin is knowing I am not alone! ha ha! I too try to keep my sense
of humor because I really don't know what else to do. Can't change it,
so might as well try to laugh at myself! I know what you mean about a
hysto. Almost did it last summer but was scared to be totally
menopausal at 33. Really wishing now I had just done it and am
seriously considering it for next year. Luckily, I have never had a
strong urge to have children, instead have lots of fur babies!, so at
least I don't have to deal with the heartbreak of infertility. At least
we all have each other on the forum. Life gets crazy sometimes for me
so I don't get to check it and post as often as I would like, but still
find so much comfort here. Hang in there!
Amy
At Tue, 2 Aug 2005, Tracey wrote:
>
>At Tue, 2 Aug 2005, Amy wrote:
>>
>>Hi Tracey! I haven't been on the forum for awhile and am trying to catch
>>up today. Your message sounds like me. I have terrible lower back pain
>>and since I do go to a chiropractor on a regular basis, can only assume
>>it has to do with my endo. I personally think that the endo is
>>effecting nerves in my lower back, which in turn makes the pain shoot
>>into my legs and hips. I have noticed that when my endo is acting up,
>>my back pain is excruiating. I often get what feels like menstrual
>>cramps in my back, but only when experiencing other endo symptoms like
>>spotting, etc. I have several good friends with endo and they complain
>>of the same thing. My Doc also tells me that many times endo pain is
>>"referred". Example: My right ovary area always hurts, but not my left.
>>Yet my right side is fine (have had three laps) and the left side is in
>>bad shape. He says the endo on the left can be causing "referred" pain
>>on my right side. Maybe pressure on a nerve or something. I think my
>>back pain is caused by this too.
>>
>>I also have lots of butt and tailbone pain, but I know that I have endo
>>in my bowel area and that seems to cause the tailbone pain. The
>>tailbone pain for me is one of the worst things about endo. The
>>pressure of sitting for a long time or riding in a car can cause me to
>>hurt and spot for days. During all of my laps, they have had to free up
>>my bowel and uterus because they were stuck together. This may be what
>>is causing your tailbone pain too.
>>
>>Sorry to ramble but I wanted to respond and let you know you are not
>>alone. Hang in there!
>>
>>Hugs!
>>Amy Meyer
>>
>>At Mon, 1 Aug 2005, Tracey wrote:
>>>
>>> Hi again,...me Tracey,
>>> Glad to have found a few woman to speak to about this Endo hell.
>>>For a long time I've had pain around my SI joint and into my butt and
>>>hip on one side.(Left)
>>>I have back problems too so I wondered if this pain that bothers me
>>>quite often is from my back,..or from Endo?
>>> Not sure if I need a chiropractor or another Lap.
>>> Is this a common thing with Endo??
>>> Anyone?
>>>
>>>Take care ,and Thanks for replying~
>>> Tracey
>
> Thank you Amy~
> Lots!!
> Glad to know its something related to Endo/.
>This disease is confusing in that,..you never know if its from Endo or
>something new.??
> I do have alot of colon involvment.
>Strange enough sounding to me I also have most pain on my left
>side,...yet after 2 different Laps..... The dr. has found more Endo on
>the other side.(weird!)
> I also notice a lil spotting when I'm in alot of pain.
> That hysterectomy is sounding better and better everyday!!lol
>not funny really,...but. trying to keep my humor if all else fails~ :)
> I was DX 7 yrs ago after the birth of my son.
> Thank God I had him first!!
>I truly feel so sorry for the ones with Endo who are unable to concieve.
>My heart goes out to them all~
> well,...Thanks again!
> I like this board. (its active)
> Take care
> Tracey
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