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Re: Anyone else using Mirena IUD for endo pain, and your experiences with ovarian cysts?From: Jennifer (anonymous@obgyn.net)Sun Jul 31 05:18:36 2005
At Sun, 18 Jul 2004, Monica wrote: > >At Sat, 6 Mar 2004, Carrie wrote: >> >>I am new to these boards and would like to post on my experience with >>endo. I was diagnosed 2 years ago after a laporoscopy and cautery. I >>had a "hunch" that it would be endometriosis as my mother has it, as >>does my auntie. I have suffered painful, heavy and irregular periods >>since I first began menstruating as a teen and also have cycles of >>diarrhea and constipation, though never been scoped or diagnosed with >>IBS. My experiences over the years with BC pills have been negative. >>Even on lower dose brands like Alesse, I would find myself becoming fat, >>weepy, neurotic and depressed, however I did find symptomatic relief >>from pain with the pill. After waiting for almost a year, I managed to >>get into an Endometriosis & Pelvic Pain Clinic, which I am very grateful >>for. I have found a very supportive physician who actually listens to >>me. While friends of mine who also suffer endo have had issues with the >>medical community not taking their pain seriously, I guess I have been >>lucky in my encounters with them. Maybe it's because I'm also an RN, I >>am able to have frank discussions with my care providers regarding my >>care. Anyway, because I am only at Stage 1-2 of endo, and cannot >>emotionally tolerate the pill, my specialist has laid out my medical >>options as being more surgery to look for adhesions/cysts, more NSAIDS >>(do they ever do a number on my tummy though), or the Mirena IUD. While >>IUDs are usually contraindicated for endometriosis because they tend to >>cause heavy bleeding and cramping, the Mirena will eventually and >>hopefully stop me from bleeding heavily, if at all. Since I have had it >>inserted though, I have had nothing but pain. Cramping pain, stabbing >>pain, pain that makes me empathize with men who get kicked in the >>testes. Emotionally, I am not noticing the birth control side effects >>since Mirena acts locally on the uterus and is not circulating in the >>blood stream in a very high quantity. However, being house bound in the >>fetal position, and missing many shifts of work due to the pain, is >>taking it's toll. Insertion was uncomfortable, because I have no >>children, my doc ended up having to anesthetize my cervix to get the IUD >>in, and I did feel mildly shaken up afterward. >>To get to my point though, I'm wondering if anyone else has had an >>experience like mine. The pain after insertion grew to be intolerable >>enough to send me to the clinic for tylenol 3, I began to think I had a >>possible cervical infection, but with the absence of fever, it wasnt >>likely. Turned out, I has been partially expelling my IUD. Ultrasound >>showed I had passed the body of the device about 2 cm down into my >>cervix, just short of it dangling into my vagina. My doctor, on my >>isistance put me on antibiotics prophelactically and pushed the IUD back >>into uterus. Infection risk was low, so I was game to try again. Turns >>out I now have a cyst growing on my right ovary (where a great deal of >>pain and pressure has been) and while it was only ovary sized in >>January, it appeared almost as large as my uterus in February on the >>ultrasound. We are assuming this is just a progesterone-cyst, a normal >>(but abnormally large and rapidly growing) thing and that it will be >>re-absorbed by my body. While the cervical pain is gone and the IUD >>seems to be doing its thing (though I have now been bleeding/heavily >>spotting for almost 2 1/2 months now), I am getting increasing >>discomfort in my right side, causing me to miss more work. I know this >>is a long post, but I am hoping that maybe one of the doctors in the >>forum may be able to give me any indication that this has happened to >>other women. How can you tell if one of these cysts is going away or if >>it has burst? Can they change from fluid filled to a chocolate cyst if >>there is internal bleeding? I get no relief from this discomfort with >>naproxyn, diclofenac or tylenol. While I am a medical proferssional >>myself, gynecology is not really my scope of practice. I have the >>basics, but really want to arm myself with knowledge about my disease. >>Anyone out there who can relate to this, please do! This disease, like >>any, is different for each individual, and I know I am using a >>relatively unconventional treatment method, so I'd just like some >>feedback. >>~cheers~ > >I also had a large cyst (18 cms long) develop IN my ovary within 3 wks. >I had the Mirena insterted for 5 mos when this happenned, and had it >inserted 2 months after delivering my last child by C section Hi, I too was diagnosed with endometriosis and, after surgery to remove it, ended up having a mirena as it appears that I also have adenomyosis.. The Mirena seemed like a good choice at the time-- anything that might reduce bleeding and symptoms was worth a try! I've had the mirena for 8 months now and in that time I've had two cysts in my right ovary. The first cyst I was unaware of until it burst (called a 'cyst accident' apparently)-- this was incredibly painful-- you'd know if this happens! The second time I had symptoms similar to having a UTI or appendicitis. Upon US they found a 4.2cm cyst and I'm waiting to see if it goes away. Like you I am interested in others' experiences of treating endo with Mirena... Cheers.
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