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Re: What's next?
From: Lisa (anonymous@obgyn.net)
Wed Jul 27 22:51:09 2005
Thank you for your suggestions Lori.
At Tue, 26 Jul 2005, Lori wrote:
>
>Hello!
>I would highly suggest a naturopathic dr. who can balance your hormones
>naturally and treat the endo with diet, fish oil and perhaps natural
>progesterone cream. I have read that rarely should estrogen be
>prescribed - even in a small dose like you said, it can grow again. Well
>especially synthetic estrogens are very bad. My dr. has told me she
>would never prescribe estrogen because I have endo even when I hit
>menopause... Did you know that there are natural estrogens besides? I
>have also read that natural progesterone wakes up the lack of estrogen
>in some ways, so that may be all you need. I am not an expert, but some
>thoughts on it. http://www.naturopathic.org is where I found my dr. See the
>site below also. The page is called: Endo, hysto's & Hrt. Also read
>the "your stories" page on what others besides myself are doing
>succesfully!!!
>
>--
>Lori
><><
>http://www.theendoclub.com
>
>At Tue, 26 Jul 2005, Lisa wrote:
>>
>>I had a complete hysterectomy in Nov. of 2004 in hopes of eliminating
>>my endo. I am 33 years old, have 4 children, and was advised that this
>>was an alternative due to the extent of severity. I had previously had
>>laparascopy in 2004, and all symptoms returned within 5 months of that
>>initial procedure. When the complete hysterectomy was performed, the
>>doctor was shocked by the extent that the condition had spread.
>>
>>My problem is that I am now suffering again with the pain. I felt great
>>for about 4 months after the hysterectomy. The doctor withheld any
>>hormonal treatment for 3 months after as a safety precaution. My
>>hormones have been changed several times since and I still am suffering
>>with immense pain. I went to my doctor again last week, and I was in
>>tears by the end of the appointment.
>>
>>He told me that he wishes to avoid another surgery at all costs. I just
>>want to be cut open and have it all scraped out. I really do. There
>>are times I would love to grab a kitchen knife, and do it myself. I
>>realize that's extreme, but I'm tired of living my life like this. In
>>pain, all the time. I can't take it any more.
>>
>>At my appointment, he started to question how much may be musculo
>>skeletal. I mean, really. I know how I feel, and I know what it is.
>>I've felt it before. He wanted me to try the new Lupron Depo, but I am
>>not going to do it. I have no female organs anymore, therefore I
>>produce NO estrogen. What's the point in taking this shot to drain my
>>body of all estrogen, and then receive a little add in of estrogen on
>>top of the shot. I already take testosteron w/ estrogen in the lowest
>>dosage possible. It seems like a waste of time, and an elongation of
>>symptoms. Then, he stated he could send me to a specialist that can
>>insert needles into my sacrum attached to some type of electronic device
>>I would wear on my side. What is up with that? People please.
>>
>>I just want someone to help me. I want a specialist that has dealt with
>>my situation repeatedly. I have read that a trained surgeon can go back
>>into the pelvis, cut everything down to normal tissue, and remove
>>anything left over. I don't understand why he didn't refer me to
>>someone that could help me. He is a great doctor and has done
>>everything he could to help me, but he looked lost.
>>
>>Can anyone give me any suggestions as to what I can do to find a doctor
>>that will help me? I have no real quality of life anymore, and I live on
>>pain pills. Sometimes they help, and sometimes they don't. I just want
>>to feel good again.
>>
>>Please offer your advice.
>
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