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Re: new to endo and need help

From: Jessica (anonymous@obgyn.net)
Wed Jul 27 18:21:31 2005


I was diagnosed at 17, about three months after I met a wonderful man. MY first realy boyfriend. I'm 19 now and have been through 1 lap, 2 lupron shots, urethra dialation, 2 steriod epidurals and a D&C. Its been exactly 2 yrs and5 days since I was diagnosed and about 2 1/2 yrs of chronic pain. Emotionally I'ma wreck. Nothing seems to help. I feel like I've tried everything in the book. Somedays are better than others. For qa long time I felt like I was a burden on my boyfriend, But he's stuck with me for these 22 1/2 yrs, so loving me must outweigh the way I act twords him when I'm in pain. I also get a swollen abdomen and my migraines are unbeleivable. I;m also starting to get TMJ from all the stress im undergoing. Well you could always try to conceieve now. MY dr. at the age I'am now told me my only cure was to have a baby. Then my endo pain would go away. Of course I got a 2nd opinon. Find the right dr. for you. I have been to many OBGYNS as well as pain specialists and GP.s. I'am now seeing an endo specialist for my pain and for the first time in two years I actually have hope! I hope you too find something that works for you, and I know that things might seem difficult with you and your hubby but they will get better. IF he truly loves you its for better or worse. Just remember you will not always be in pain. Jessica

At Wed, 27 Jul 2005, Amy wrote: >
>Hi, everyone.
>my doctor just diagnosed me with endo about 2 months ago, and it is only
>after reading your messages in this forum that I am finally feeling some
>relief. My symptoms persist, but just knowing that I am not alone is
>such a comfort.
>
>That being said, I just need a little assurance from y'all to make sure
>that I am NOT losing my mind. The physical pain of this disease is
>pretty intense, but it's the other symptoms that are killing my spirit.
>The nausea, swollen abdomen, migraines, and MOST especially, the
>emotional strain are difficult to bear. Does it get any easier? I cry
>every time I get off the phone with my doctor's office because I feel
>like it's hopeless. My husband is so understanding, but there is only
>so much that one man can take. We do not have children yet, and now I
>worry that he has signed his life away to a woman who lives with chronic
>pain and cannot reproduce. Does anyone have any words of wisdom or
>advice to a newcomer on the endo scene?
>
>thanks






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