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Re: frustration
From: Abigail (anonymous@obgyn.net)
Mon Jul 25 12:03:11 2005
I just thought I would urge you not to give up on looking for Drs. There
are some good ones out there, & I know how hard it is to travel to them.
You may try http://www.pelvicpain.org They are up to date on some new
treatment. But I know that is discouraging if you've been thru many
other treatments.
You've had it a long time, and the people around you, probably don't
know what else to do either. But if you stop looking for help, They are
not going to pick up the ball.
I do think it is natural to have lapses in your search for help. And
the frustration adds emotional pain as well as aggravating the physical
pain. Just know, there are those out here that do care. Keep your
spirits up.
Abigail
At Mon, 25 Jul 2005, lori wrote:
>
>Hi, I am having a hard time coping with things lately. No one around me
>understands how I am feeling, nor do they want to try. I was doing okay
>for a while, but the pain has come back and seems worse. I have a hard
>time seeking a doctors advise, because I don't feel like they help or
>understand. They keep taking my money and not helping and they really
>don't want to listen to me. My family doesn't support me, they just act
>like nothing is wrong and that I am overreacting. Even my parents and
>my husband. My sister gets it after she started having problems. She
>doesn't know if she has endo, she suspects it though. I was diagnosed
>with stage IV endo 7 years ago and had been complaining of pain since I
>was about 14. I'm 26 now. I just don't know how to get people to
>understand. I try to educate them, but it isn't enough. I need them to
>see the facts and understand that I am not making it up and that this is
>real. About 6 years ago my cousins wife who is a nurse told my aunt
>that endo wasn't a big deal. What kind of nurse is she? I would like to
>know if any of you had this problem and if so, what did you do to help?
>I would love to hear from you all.
>
>Hugs~
>Lori D. ( I am signing my name Lori D. because I see there is another
>Lori out there)
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